Hi AllyG
Sorry to hear your uncle is going through such a hard time right now. Secondary Progressive MS is the type that starts out as RR and then becomes progressive over time. The other form is Primary Progressive MS. This is the type that usually isn't defined by specific "attacks", because there isn't a remitting period in between. As far as treatment, Secondary Progressive is treated with chemotherapy. It isn't as targeted as the disease modifying drugs, but it has shown to be helpful in secondary progressive. Is your uncle on the chemo Novantrone? As far as Primary Progressive MS, no treatment has been shown effective. I guess the problem is... this form of the disease progresses at a slower rate and it is harder to track the effects of treatment. Doctors tend to focus on symptom management with other medications, instead of treating MS as a whole ineffectively. I am surprised your doctor wouldn't discuss this with you. Knowledge is power. But I guess he was somewhat right... don't worry about what may happen down the road in your case. Just take it day by day. But since your uncle is going through it, it is good to be educated. I hope this helped alittle. I have done alot of research because when I was diagnosed I wanted to know everything about everything. It helped me somehow... so I hope this helps you. Take care
Linear Mode
