l hermittes - Multiple Sclerosis Message Board

curious11 · 12-18-2005, 08:46 PM

Does anyone know the significance of where the tingling goes when you bend your neck forward? I can remember my neurologists asking me exactly where the tingling went/ where it stopped. Does this mean anything? When it started it would travel down my legs, then it would stop mid-back, and now it goes down my arms. This is all over a 9 month period... but I wonder if it means anything? Anyone know? Thank you and I hope everyone has a Merry Christmas!

Natatude · 12-18-2005, 09:23 PM

i asked my neuro about it when i went to see him dec 8th and he said it could definately be lhermittes sign,,, but didn;t say anything else about it,,,, cause i asked him if i could have that as well and he said oh yes most definately,,, but didn;t go on about it so i have no clue ,,, is there meds or anything to help with that??

lilc · 12-19-2005, 04:51 AM

curious, I don't know the significance of the "signal path", but mine was VERY intense for about 6 weeks (for a few days I couldn't tip my head to put a key in a door) and it did sort of travel. Started with my legs, moved to lower back, arms, it made me crazy because when the doctor asked where the signal went I'd have to bend my neck and say, "Well, TODAY..."
I don't know if it matters, but I had no lesions (or any other problem) at all with my neck - all lesions in brain.

curious11 · 12-19-2005, 06:34 AM

Yes, lilc... my neuro was very exact about where the vibration stopped. I kept having to bend my head down and figure out exactly where it was going. I figured it must be of some clinical significance, but again, not sure what. I will ask next neuro appt. just for knowledge! I have a solumedrol treatment today, so the l hermittes is on it's way out for a couple more weeks! Natatude... I believe the l hermittes is caused from lesions (damage) in the cervical spine area. So if you have lesions there, your neuro probably expects you to also have that symptom. I don't believe it can be treated... just one of those annoying things we get to live with! Yayyy!

haha. Take care everyone

sunshine149 · 12-19-2005, 10:23 AM

I have this same symptom and my neuro put me on Neurontin, it helps but doesn't stop it completely. I'm hoping it goes away soon!