Newly diagnosed - Multiple Sclerosis Message Board

Tiggerredz · 02-09-2006, 02:03 PM

Hi,

I have been posting on the Anxiety boards for sometime now, because I thought all of my symptoms were due to anxiety...after extensive testing, an abnormal MRI...I have been diagnosed with MS...by my nureo and my GP.

I am totally new to this...have no idea what it is...All I know is my sheet from my brain MRI states that my briain is not normal for a 28 year old due to white matter and lesions and is progresive with MS....I am getting married in like 13 weeks..told the Dr's I wanted to hault on everything sue to my wedding...I just want to have fun right now and relax...and get married...so I haven't done any research...can anyone help me with what I am looking forward to? Thanks!

Punkdizzle · 02-09-2006, 06:22 PM

hey welcome to the club.. you probably remember me from the anxiety board and i too was told my weird symptoms were from "just anxiety" for years.. now we know that was not the case..

you may not be looking forward to anything bad at all for a long time or maybe nothing at all.. in my case the my neuro said it looks as though i have had MS for quite a while but other then getting optic neuritis in my eye (which is what led to the MRI and then finally the Dx) i have had no set backs at all in my life yet.. and the optic neuritis is slowly clearing up..

if it were me id go ahead with any of the testing you feel comfortable with and maybe get started on one of the CRAB meds asap.. the sooner you get on top of MS the better it can be in the long run.. i wouldnt think it would cause you not to have fun or be a problem with your wedding coming up..

i still do everything i had been doing before the Dx and i have had it for a while but just didnt know i had it till Oct of 05 so i dont see a point in making a big life change just because you know you have MS.. just take it day by day and try not to let it get you down or stressed (easer said then done i know)..

Sharon Grace · 02-09-2006, 10:33 PM

Welcome Tig! Sorry to hear about your diagnosis. I, too, was told for years that stress and anxiety was my problem!!! I think many of us MSers went down that road before being diagnosed. Just so you know, I found out about it five months before my wedding. The wedding was great, no snags, no change in plans, just a perfect day. And your wedding will be perfect too

As far as MS goes, my suggestion to you is to contact your local MS Society for info and search the web. The more info you get, the better equipped you will be to make decisions, decide on a drug therapy, and get on with your life. Yes, MS will affect some aspects of your life. Sometimes, you'll have to work around it. Sometimes, it can stop you for a bit. The course of this disease as well as the symptoms are different for every person who has MS, so at best, it is most unpredictable. That is the tough part to adjust to. The MS Society has great booklets on lots of subjects dealing with MS. They will gladly send them to you if you call. Also, this board is a great source of info, support and a place to yell and scream if you need to. Please keep in touch, and again, welcome to the MS board

Sharon Grace

Tiggerredz · 02-10-2006, 10:37 AM

Thanks PunkDizzle and Sharon Grace for your encouraging kind words...afetr getting back to work yesterday with the second opinion...I was kind of in a daze, numbing state I guess....I went home...and went to bed and today I am doing much better...The Dr. asked me yesterday if I was depressed....and I said no...I actually am happier now than before...she said that usually happens when people finally get an answer...So I guess the weird symptoms I have been getting have been from the MS...it is sooo a chicken or the egg thing with me.....

JulieDe · 02-10-2006, 10:57 AM

Hey Tigger, my name is Julie and I was dx in Sept of 2004. I was stunned at first. My symptoms came at me really quickly, numbness in pelvic region and tingling in feet. They have since gone away, with slight tingling left in feet. I've been on Avonex since Oct 2004 and have been doing really well. You wouldn't even know I have MS. My follow up MRI showed "remarkable improvement." I would definitely do some online research and get in touch with local chapter of MS society. Visiting these boards has been really helpful for me too. Welcome!