Gosh, I really feel for you, but I have not experienced what you and many others on this board are going through.
I pooh-poohed my pains and wrote them off as old age prior to my attack. After my attack, my husband has been nurturing, caring, and overly concerned to the point that he baby's me. Most of the time it bugs me that I feel that I am under a microscope with him and he is constantly asking me if "I'm allright" and wants to do everything for me.
I am not going to let him do everything for me - only when I ask for help. I used to be the dynamo in the house and in our relationship and now our roles are reversed. He has been on disability (injuries from being a beer delivery driver for 21 years) for the past 6 years and he is more concerned about me and I am the one more concerned about him.
I freaked him out really bad when I had my attack in the middle of the night and was totally useless for 5 weeks that he is in a panic that it will happen again. And now my mother is visiting and she is putting me under the same "microscope" and pressuring me to get answers.
I only have 2 lesions, but no dx. I called the National Multiple Sclerosis Society here in San Diego and asked for a referral to a local MS specialist since my own neuro does not want to see me unless my GP refers me to him.
I received a referral to a Dr. Jody Corey-Bloom, faxed all of my diagnostic tests to her (MRI, CAT scan, blood work) and hope that she will take me on as a new patient. I have read some of her research on the internet and am excited about meeting with her. I have never had evoked potential testing, MRI of the spine, or an LP. Not that I am looking forward to an LP and will have that be a last resort, but at least they can do the evoked potential.
My previous nuero could only tell me "I don't think you have MS". Well, if I don't have MS, then can you please tell me what I do have! It is my GP who believes that I do have MS.
I also took the advice of others on this board and picked up the CD's of my MRIs and my CAT scan films yesterday, so that I will be able to take them with me to a new neuro.
The "I don't know disease" just isn't cutting if for me anymore and would like to have a definite dx of something other than "demyelinating disease of unknown origin". However, even if I do get a dx, I am not so sure that I want to take the drugs.....
It is definitely a long journey through limboland, but at least I have proof that something is wrong due to the MRI results.
PS: I know this doesn't help much, but I used to be the kind of person your boyfriend is and while I was healthy, I could not stand so-called whining and complaining of aches and pains from any of my family members (kids or husband). Now on reflection, I wish I could have been kinder during their moments of need for sympathy.