Got LP results, would like to talk - Multiple Sclerosis Message Board

sooty · 04-03-2006, 08:19 AM

I received my LP results last week. I have oligoclonal bands!!! I have a cervical spine lesion, brisk reflexes and left sided symptoms - numbness, burning, stabbing pains, weakness, plus V tired, burning neck, cramps, heat problems, etc, etc. Based on this I have been told I have 'Mild MS' that it is in the early stages, I cannot be formally definate MS as I need another relapse - I was told this would be something completly separate, i.e. eye problems or problems with the right side, etc.

Without me saying anything, the neuro said "it's not stress and you're not imagining it, there is something there and the lesion on the spine is causing the symptoms" this was such a relief to hear this, because I felt that if the LP results showed nothing that would be it and I would be shelved!!

I am still in shock, even though I knew something was wrong and that it 'might be MS', after a while you start to doubt yourself, I've had comments such as 'I get tired too' 'Are you depressed' I do know it is difficult for others to understand, but it all adds to the doubt.

Anyway, my neuro is writing to my GP to get him to prescribe Modnafil for the tiredness, so a bit more waiting, but I am hoping this will help when I get it.

Now I know for sure what I am dealing with I feel I can get on with things a bit more.
Thank you for listening.
Sooty

orngcrayon · 04-03-2006, 11:16 AM

"Congratulations" isn't the right word, but I'm glad you got test results that were at least partially conclusive! It's never a good thing to be diagnosed with something like MS, but it can be a real relief when it's been hard to track down! Lets hope that next relapse is a ways away

duttin · 04-03-2006, 06:55 PM

MS is scary,but I honestly feel not knowing what is happening to our bodies is worse than MS itself.I'm happy you a have a diagnosis.It will give you a peice of mind.
My LP came back with myelin basic protein high elevation,significant with demylination occuring.Neuro says non-specific,but could be causing the sensory problems.I'm having visual evoked potential and somasensory evoked potential done tomorrow.Hopefully it will tell something.I quess they are used when suspected micro-lesions are present,but don't show up on MRI's.
Keep ue updated
Prayers to You
Toni

sooty · 04-04-2006, 04:25 AM

You're right you do need a diagnosis because it is so stressful not knowing and that probably adds to the symptoms.

It's taken two years to get to this stage, from January has been the most stressful for me because it was the last stretch of waiting for results - worry is not a good thing for your health and wellbeing!!!

Nuffs3 - I hope your appointment goes well, from what I've read of your posts it sounds like you've had to push hard for tests, it seems to depend on where you live or who your Neuro is as to whether the docs follow through with the right tests and quick enough. Do you know how long before you get results?

Thanks for your replies.
My prayers are with you.
Sooty

lilc · 04-04-2006, 05:38 AM

Sooty, did they say anything about starting one of the CRABs? Early treatment does seem to be important.