Help!! - Multiple Sclerosis Message Board

sophiehg · 04-04-2006, 01:52 PM

Hello anybody! i've joined this website because i'm frustrated and depressed because no-one seems to know what's wrong with me but to me it sounds very much like i have MS but nobody is telling me so!

I woke up about 8 months ago with funny vision, the room was kind of swimming and after a day it subsided just to be double vision on the left hand side which i still have. Since then i have had 2 other episodes, both the same, a very strong numbness sensation all over which localised to numb spots on my face after a day but during this time my speech was very slightly slurred. Since then i have had a tingly itchy face where the numb spots were which comes off and on but it feels like i can't scratch the itches as if they are 'below the skin??!' An MRI scan after the visual episode revealed what my neurologist described as a small dot in the visual field of my brain but i am still waiting for my next scan.

The wait is killing me, I have become depressed and i am permanently distracted and tired. Some days i feel fine and others i feel poo! But my neurologist seems to be unalarmed and says to just wait and see.

What i am really hoping for is to speak to anyone with any similar experiences or just a friendly ear as I don't feel like my friends can really understand and i am acting very out of charcter and irratic, I don't really know if this is because of phisical symptoms or due to stress! It feels like i'm going a bit crazy!

I know that these problems are quite trivial in the scheme of things but everything has happened so quickly in the space of about 6 months and during that time things have gone pretty wrong in my personal life and i feel a bit alone. Thanks for any advice or replies!

much love and best wishes, sophie x

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dwallech · 04-04-2006, 02:03 PM

Hi,
I feel I am in the same boat you are in. I have had a lot of problems, and just recently was told by my nurse at the hospital that she has MS and from what she saw she thinks I have MS as well, but all the drs are wait and see and not sure what is wrong. I see the neurologist tomorrow, but I am extremely tired and am not sure what is wrong. Hopefully someone else will read your post as well and can fill us in as I am anxious to find out as well. Hope you feel better and get some answers as I am extremely frustrated and I had several MRIs as well. They did tell me there is some nerve damage in the brain showing on the MRI but I still don't know what it all means. Hang in there and let us know if you find out anything. I hope you feel better and get some answers soon!!!

sophiehg · 04-04-2006, 02:17 PM

thanks so much for your reply it sounds silly but it really has made me feel better already just to know there's someone else out there who is feeling a bit the same. I was actually really shocked when i got a reply so quickly.... I wish I'd signed up to the site a few months ago...

best of luck for tomorrow and be sure to let me know how it goes... i'll think of you!

duttin · 04-04-2006, 02:47 PM

Sophie,

Welcome, there are many in your shoes ,undiagnosed.I have had every test under the sun and still waiting in limbo.Family DR is sure its MS,but clinically I don't meet the Mcdonald criteria.My symptoms began 8 years ago and I dismissed them.18 months ago,I started to have severe muscle cramps in legs(spasticity)has impaired my ability to walk any length of time.I have had 1 episode of complete visual loss.Blurred vision,double vision.Usually brought on from heat.Numbness,tingling,off balance,fatigue,weakness.I had evoked potentials done today.
Diagnosing MS plus other neurological disorders that mimic MS takes time to figure out.Its a process of elimination.Stress is our worst night mare.
Your noy going crazy and your not alone.

Prayers to you
Toni