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Old 04-15-2006, 12:56 PM   #1
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1Thes518 HB User
What else besides MS causes tingling?

Hi. I have not been diagnosed as of yet, but have been told what I DON'T have: it is not diabetes or low thyroid, not peripheral neuropathy, and not a disk in neck/back, or a pinched nerve.

I have about 6 weeks before I can get in to see the neurologist for a consult, so I'm just obsessing and worrying about my health!!!

My symptoms are tingling/pins and needles in various places like my face, scalp, arms, hands, feet, and sometimes parts of my back. They get worse with heat. I am very tired, and sometimes need to take a nap once or even twice a day! I had some visual problems, but the doctor said my eyes were normal and it was not ON.

So, to play Devil's advocate, what other things could be causing this???? I am partly afraid that I have convinced myself that I have MS because my husband thinks I am a hypocondriac. I really feel like it is the only logical explanation for my symptoms, but maybe I am just crazy....

Anyone else feel this way?

Thanks for letting me vent!
1Thes518
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In every thing give thanks, for this is the will of God in Christ Jesus concerning you. {1Thes5:18}

 
Old 04-15-2006, 10:27 PM   #2
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lilc HB User
Re: What else besides MS causes tingling?

1Thes, B12 deficiency can cause numbness/tingling. I'm guessing there are other things, too, just can't think of them right now.
It is so tough to decide whether or not to mention sx to our loved ones. Too often they think we are whining or making excuses. Not often enough, they think we are just fine and we suffer in silence, making the suffering worse.
One thing I have discerned: Numbness/tingling is NOT normal. I dismissed mine for a few years, figured it was aging. I NEVER talked about it, just tolerated it. If I had seen a doctor about it when I first had the problem I would probably have had a multi-year diagnostic process. Since I ignored it until I had severe L'Hermitte's I got a relatively quick dx. Who knows?
If you aren't getting the support you need from your husband maybe you can contact your local MS Society chapter. I'm inclined to believe you might find a support group, even though you aren't dx'd yet.
I'd suggest you don't "suffer in silence". I tried that. Not helpful.

 
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Old 04-18-2006, 07:16 AM   #3
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Re: What else besides MS causes tingling?

If you type in tingling symptom into your search engine, you're going to get tons or diseases pop up. Unfortunately, this is a common symptom for a lot of different things.

Last edited by gib70; 04-18-2006 at 07:16 AM.

 
Old 04-18-2006, 07:56 PM   #4
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Re: What else besides MS causes tingling?

I was diagnosed with MS in 2004 when I had a bout with ON. I went to the eye dr and couldn't find anything wrong, so he suggested an MRI. They originally thought mini-strokes or MS, and they leaned toward MS. Once I was diagnosed, I looked back on my life and realized I had symptoms for at least the last 7 or 8 years that should have been red flags. One of them being the time the entire right side of my body went "numb" or tingly. I sought chiropractic treatment, which eventually completely relieved it. Tingly is not normal and as stated earlier, is a symptom of so many other things. MS in not an easy diagnosis, so try to be patient. I know it's easier said than done. I am having a flare right now and it's all I can think about. Suffering in silence is not the way to go. I am fortunate that my husband and family have been supportive, even before my dx. I feel like I'm always complaining, so sometimes I keep it in. In the end, I end up telling my husband. He notices things before I can even tell him, so he will ask. The best thing I did was to sign up here and also check out my local MS Society chapter. My husband is the one that suggested we do the MS walk! Writing about things can also be helpful. I keep a journal and not just for the MS. There are several avenues you can take and I wish you luck. I know about the 6 week wait to get into the Neurologist. I was in the same boat, and started calling other doctors in my insurance network to see if I could get in sooner. Good luck and try some of the suggestions from us. They can help more than you realize. Hange in there!

 
Old 04-19-2006, 05:46 PM   #5
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Re: What else besides MS causes tingling?

Thanks for the replies, guys! My MIL thinks I have Lyme disease, and do live in an area for it, but I don't think that fits my symptoms at all. I am very frustrated by the long wait to see the neuro., but will try to be patient.
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Old 01-24-2008, 11:49 PM   #6
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Re: What else besides MS causes tingling?

I have been having the tingling on the right side of my body from my head to my toes for 5 days. It gets worse as I sit or stand still and really bad when I try to lay down to go to sleep.

I went to the regular Doctor yesterday and he said I didn't have a pinched nerve or blood clots etc..things I thought I had. They drew some blood and I waiting for the results

I have a 2yr old and I just gave birth to a baby in September so I am really worried that I may have MS or something else similar.

I am scheduled to go the Neurologist next week. Can anyone tell me what they normally check for on this inital visit and can I get a diagnosis on that visit?

Thanks for any help in this regard

Last edited by Martinasmadre05; 01-24-2008 at 11:50 PM.

 
Old 01-25-2008, 03:49 PM   #7
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: What else besides MS causes tingling?

Hi Martinasmadre-
you will more than likely NOT get a dx on that visit. MS is one of the hardest diseaes to diagnos, and it takes LOTS of tests to do so. Those tests start with MRIs and then proceed to spinal taps, Evoked Potentials, sometimes Eye or Visual Evoked Potentials (if eye pain is a concern). The idea behind this is to rule out everything else, and when nothing comes up, the disease can be looked into. Check out the McDonalds Criteria for how they diagnose MS to learn more....

As for what they will do at the visit, probably a full Neuro exam which consists of balance checks, reaction times (with the mallet on your nerves to make sure they both react and that you can feel hot and cold and vibrations). He'll do a "follow the finger" to check your eyes and then he'll do the Touch your nose, touch my finger to check your vision/reflexes/ coordination....theres alot of quick neuro tests they can do in less than 10 minutes....he might also watch you walk and do the "Drunk exam" walking toe to heel to see how your balance is...

Assuming they find something, or dont, its more than likely that you will be sent for an MRI- theres no way to check for lesions or tumors or anything else which might be causing your symtoms without it....ask to have a MRI with and without contrast...by adding contrast to the mix, it helps to show things which doing it without might miss...

Wishing you luck, please do let us know how you are..
Nikki
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Old 01-25-2008, 07:10 PM   #8
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Re: What else besides MS causes tingling?

Had to add a note about being a hypochondriac. My husband mentioned he had not slept well the other day and said he had woken up and his leg was asleep and he had to shake it to get it to wake up, then he could not fall right back to sleep. I said join my world, I have it multiple times a night in all different areas, arms, legs, shoulders, butt, etc. He had gone to the MS specialist with me and heard him comment about my pain tolerance and how I just go on without acknowledging how much things must be bothering me, so he had this funny look and said, wow, I guess I just have not really thought about it. I'm sorry for even complaining. I then gave him a quick kiss and let him know that his acknowledgement is more than enough.

I have noticed him watching me much more closely since then also, so I'm very glad the doctor made the comment. He is a great husband and definitely does his share, so I hate it when he tries to do more than his share, but have to admit it's been a nice week and I don't feel so guilty when I plop on the couch or head to bed early.

And FYI, a baby in September and a two-year old, fatigue is a given there. However, I was diagnosed with hypothyroidism after my second and some of your symptoms definitely fit in there. I would hope that was included in your blood tests. Good luck and try to enjoy your little ones, they grow up very fast.

 
Old 01-25-2008, 10:26 PM   #9
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Cool Re: What else besides MS causes tingling?

That wait for the neuro appts was a killer. I called for my original appt on 12/7 and it was set for 1/28. I asked to be put on a list for cancellations and they did place me on the list. If they had not I was going to call occasionally and ask if they had had any cancellations. they did call and I went to the first appt on 1/14, I have had all my tests and my follow up is 2/8. So ask about cancellations it could move your time frame up quite a bit. Good Luck!
Traci

 
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