Hello everyone. I'm going to the doctor on 25th, but I want to talk to someone now. I was wondering if what I'm experiencing is similar to want other had before becoming diagnosed.
For the past I guess two months my feet and hands mostly, but also my legs, arms, neck, back of head, face, and between shoulders have felt tingley, often numb. My hands and feet are really cold and my feet almost constantly stay numb & tingley, regardless of position or activity.
In the past two weeks the muscle in my left thigh is twitching. I see it under my clothes and never had that before.
Once looking up those symptoms something on google, MS came up in my search. I looked at symptoms and saw that an eye problem I had a month before this started sounded similar to an eye condition of MS.
I went to the eye doctor for new glasses, they gave me an eye test with these sqiggle lines and my right eye did significantly worse than the left in two tests. The doc asked questions and I had been experiencing a dull "shadowy" feeling in my right eye with occasional eye pain when it moved. I recall that lid twitching often. He then had me look at this red cap and asked if it was different. It was duller in my right eye, but not extremely different. He asked me to come back after a month and give my glasses a try if it was worse he would send me to a specialist. It got better so I didn't go.
It is now coming back and yesterday I had this weird circle in the middle for a few hours that just went away.
I have also saw that over the past five yrs since having my daughter I have a list of similar symptoms. Walking into things, stuttering, losing my words, waking with pain in my jaws, a pain frommy head to the top of my spine. These just come and go. I have trouble holding my bladder and often kind of go without knowing it.
Am I crazy? My family calls me a hypo. Does this sound like anything others experience? If anyone could help that would be great? Bless you all!
The internet can be wonderful or pure evil. Before you try to diagnose yourself, you should wait to talk to your doctor. I mean do not let them just say we dont know what it could be and leave it at that. Make them find it. It took me from November of 2000 to March of 2001 before I was diagnosed. My symptoms got better and cam back all the time. Keep asking questions, request an MRI, a spinal Tap, blood tests, etc. do research thing that it might me via the internet, but use it for resources only. To give you ideas of what you can have your Dr looking for. Your symptoms sound a lot like mine did when I was diagnosed. Hang in there, if it is MS it is managable and not as bad as it once was.
This is a coincidence! I have my first appointment with a neuro on the 24th and then May 2nd an appointment with an endocrinologist. I can't offer any advice about ms, just thought I would let you know that I'm in the same place you are--waiting and wondering.
I have had terrible fatigue for about the past 9 months. Now in the past three months I have been having problems swallowing. Also, off and on for about four years I get vertigo. I have the same odd twitching in the leg and back sometimes--it doesn't hurt, it's just strange!
You should make sure they check your B12. Starting about 15 years ago I had numbness and tingling in my feet and hands and a diagnosis of carpal tunnel syndrome (I had the electric test, whatever it's called). Then about 10 years ago my gp discovered that I was B12 deficient. Once I started on B12 injections those problems went away as did my chronic depression. Unfortunately some doctors use the depression against me--they keep saying that my current problems are caused by depression and don't want to believe me when I tell them that I'm not depressed. Somehow I'm not able to tell the difference
ive have very simular simptoms to you.ive had them for over 2 years.still havnt found out what it could be.
ive actualy booked an apointment with a Dr who specializes in Lyme disease.
a lot of people who have had been diagnosed with ms.turns out they actualy have lyme disease..
Have a look at the lyme disease section. worth a look!
Hello. I know where you are coming from. My dad died in July of 2002 of MS and we buried him on my birthday. I dont know alot about the disease but I do know that it attacks your central nervous system. Dad would always pass out and his muscles were weak. He lived for about 15 years with MS but it eventually took over his whole body. I wish I could have known of better treatment for him when he was first diagnosed. I wish you the best and hope it is not MS. The best advice I can give you is see a doctor and if he tells you that it is MS please get a second opinion. You cant be too trusting of these doctors anymore.....all they want is money. Take care and wish you the best.
I went to the Dr. office and he made me do all kinds of things.
Stand with my eyes closed, which, makes me want to fall over. Squeezing and checking all my reflexes. I felt like I didn't even feel them.
Anyway, he said maybe its just stress and that he hoped it was stress. He then said everything that is going on points to a neurological disorder.
I go for my MRI on Monday. I wish it was sooner but I think I'm actually pretty lucky to even get in that quick. I have a wonderful doc and feel fortune of that.
I hope it all comes back normal even though I don't feel normal. I'm only 26 and have two great kids. I'm not ready for bad news.
Hi, I've had very similar to you and i am awaiting my first appt with the neuro on the 28th oct. My symptoms started out of the blue and apparently was triggered of by a bad migraine, in which the entire right side of my body became numb and i was totallt unable to move any part of my right side,
I have a long list of things that hjappen to me and i am terrified in case it is MS, I would like to think that my symptoms are caused by a lack of vits or something silly like that. I know that i shouldn't have looked things up on the net but i did and every symptom i have fits with ms, I've looked for other options but as i'm no brain specialist, i wouldn't know where to start.
I do feel like i'm going mad, My symptoms are more an annoyance than anything and i find myself getting really annoyed with myself when i drop a glass, can't hold me pen to write, bump into things, get my words mixed up and forget how to spell words that i've been able to spell since i was in primary school, I have good days and bad days and then terrible days.
Does this sound similar to anyone.
Please help, i'm at wits end. I just hope the docs can pin point what it is when i go on tuesday. I don't think i could be left hanging on like this.
I've had an MRI which came back showing a few small lesions, Im not sure what that means for me as the doc has said nothing other than i have signs of ms but doubts it is, that was my Gp.
Being in the UK, are you going private or under the NHS? I am seeing a neurologist at Lancaster and things move very slowly. I would suggest getting the telephone number of the neurologists secretary so that you can phone them to chase up test results etc. Also I would keep a diary of your symptoms and take it with you, as you sometimes forget to tell the doctor all your symptoms when you are feeling rushed. I first went to my GP 5 years ago and have had to keep pushing to get tests and appointments.
Thanks for that,
I went, my consultant never mentioned MS on my visit but he did say he thinks i might have a slowing of blood to the brain. I don't know where he is going with my test and things, I had 15 different bloods taken, another ECG, I have an appt for an Echo on my heart on sat 8th nov and another on 12th for a scan on my neck. I'm stuck in limbo at the moment and will have no further clue until I go back to see my doc in 3 months time.
Whatever it is i hope they find it and sort itt out. I've only been suffering for 5/6 months but that for me is long enough. All my symptoms do fit with MS but i have a few others that don't. I don't think it is and i don't want it to be ms.
The consultant said i have a high stroke factor, what thats meant to mean i don't know.
Am worried because i have a small child to care for and this whole thing is staring to take over my life
Just a quick thought...have you had your thyroid levels checked... your symptoms match hypothyroidism....Extreme fatigue,depression...carpal tunnel....problems swallowing ?? take care. Sorry message intended for Elfreda
Last edited by angela30; 11-03-2008 at 03:18 AM.
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