Neuro say probable MS - Multiple Sclerosis Message Board

Littlebelle · 06-09-2006, 03:06 PM

Hi all I have been reading these boards for a while. I think I posted once but can not find. Well after a very scary time of waiting I at least got a direction the neurologist is leading towards. He said the test on the spinal tap showed I had whatever he called it for MS. And my symptoms match MS. But I only had one spot on the MRI that could be or not be MS. So he is looking for more evidence before starting treatment. I have a EPS and a EMG in a month I believe he is a specialist because of all the pamplets in his office LOL. I was surprised that he would even say he was guessing it to be MS as from all the posts I have read that people waited months and years to find out. Or that the doctors just tell them it was in there head. I stressed my self out worrying about being told all the tests where normal. So I actually was feeling happy that there was something they found. Is that not stupid. Yes I am told it looks like MS I am there thinking yeah he does not think I am crazy. My greatest fear.

Well I am lucky in one way here in Canada you wait 6 months for a MRI. And to see this doctor people made appointments in October to get there first appointment today. I saw him in a month and again in another months for the testin July. So he is taking my case very seriously and is trying to get me diagnose quickly. Not having me wait months. I am happy for that.

I do not officially have MS but I do have proabable MS. So I felt save share on this board.

One question I have. I had an attack and lost my abilities to walk with out shuffling or person helping me. Now 6 weeks later I can walk with a cane and use a walker by afternoon as my legs do not listen to me much by then.
I know eveyone is different but how long does it take to come back. I also know I may not get it all back. I was kinda figuring I would have got it all back by now and I am a little nervous this is the best it gets.

Thanks for listening.

On the bright side my hubby got me a scooter to take to Disney World and the neuro signed a form so I can have a handicap room so my scooter will fit in the room and I will not have to deal with a tub. Can not wait to go but I still have 4 more months to wait. But a good goal

lestoby · 06-09-2006, 07:20 PM

Hi,

I too have "probable MS", but it is only suggested by my GP (not a neuro) and I have 2 lesions / 1 severe attack.

It took me almost 2 months before I could walk without shuffling. I walk pretty much normal now (10 months later), but I still have periods of where I drag my R foot if I am tired. I have constant R calf burn everyday, but I am not so sure what causes me to shuffle when I am tired. It is almost like your leg is detached and it is a puppet on a string and just won't behave!

I do remember the time shortly after my attack and I could not walk unassisted anywhere for 5 weeks. If I so much as looked up at the horizon (anywhere but my feet), it all felt so confusing and it was like my mind was not computing. Hard to describe the sensation, but I did not have the problem when I was laying down. Just when I was sitting, walking, or standing. I thought for sure I had a stroke - but all of the obvious signs point to MS, I just can't get a neuro to say so.

Best wishes to you

Littlebelle · 06-18-2006, 12:11 PM

Well I had my second attack. Just kicks you in the but doesn't it. Back to square one again. But seem to be coming back faster this time since the doc gave me baclofen. Makes my walking so much better. Though I feel unsteady when walking at least I am not doing the funky shuffle. My first MS symptom drug. Some mile stones are just not worth celebrating.

Well I am slowly feeling better. No I know I do have active MS. As the second attack was confirmed by the doc. Now to find out which one I have and start the drugs. I was scared at possibly having to take them but having a second attack 7 weeks after the first put it all in propestive. Want to try and stop this if I can. So I am willing to do what it takes.