Thank you both for your well wishes. Wish I could say it went well but it didn't! Here I sit tonight still as mad as I was when leaving the Medical Center and no relief for these spasms. I was too mad and upset to stop anywhere on the way home to get the stuff you told me about Toni. If my cousin hadn't been with me this afternoon I would still be wandering around the Center and parking garage trying to find my way out, my mind couldn't focus on anything except anger toward those stupid doctors!!!
The main problem was the doctor they scheduled me with wasn't a true "MS doctor" which I was afraid of before going. I had checked the website and couldn't find him listed with the MS department. When my neuro had his secretary call she asked for the MS department but apparently they just gave her neurology and scheduled me with a regular neuro who turned out to be a resident. I spent all day a few weeks ago typing up a list of symptoms, when they started, the treatments and tests received to date so nothing would be missed or forgotten, also thought this would make it easier for the doctor. I handed it to him first thing so he could read it and ask questions as we went. He glanced at the first page then laid it aside, never picking it up again.
Won't bother to do that again, he tried to give it back to me when I left. He went through all the normal tests neuros do then took my MRI's and left the room. About 15 minutes later he and the "real" doctor returned. This is when it got bad!
The real doctor said you don't have MS, I don't understand why your neuro thinks you do.
Then he goes on to explain he believes all the problems are caused from my back problems........my hearing is bad, my bladder, my balance, my body jerking is because of my back? So hey lets fix my back and I'll hear again right?
I almost laughed outloud....what an idiot!!! So I said OK, how do you explain the O-bands on the Spinal Tap? He said we need to redo it because it's wrong and also repeat the Evoked Potentials because you were nervous and anxious the day they were done so they are probably incorrect too. Now how he knew I was nervous and anxious I don't know, first I wasn't and second, there isn't a thing on the reports that say it. Then finally he said what I was expecting to hear, "There are no lesions on your brain MRI or cervical MRI so it can't be MS." He said we don't have your spinal MRI so we don't know about it. At this point I didn't bother to tell him it was on the same disc as the cervical MRI because I know I'm dealing with a complete IDIOT!!!
They left and the resident returned with a Spinal Tap consent form for me to sign which I went ahead and signed knowing I'm not going back but as I was signing told the resident I didn't agree with a single word his superior said, not a word of it and walked out of the room. I've called my neuro to tell him all this but he didn't return the call this afternoon. What a day! My neuro sent me to them for a second opinion and to get me started on one of the CRABS but instead they took away my diagnosis, stuck me back out in limboland and no telling what they have done to my chances of getting disability approved. Hope my neuro is willing to forget this second opinion thing and treat me himself after this fiasco today! If he won't then there is no other choice but to start over with a new neuro if my insurance has another one on the list. Just the thought of starting over makes me sick to my stomach!!!!
To make the day even worse received a phone call on the way home from my oldest daughter in North Carolina that my brother-in-law died this morning from a silent massive heart attack. He was only 43 years old with 2 small children. Such a tragedy!
Life is so difficult at times! I'm completely exhausted, mentally and physically, hope and pray some rest will help if sleep will come so all this can be dealt with calmly tomorrow.
Lynne
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