shellymay

Just wanted to talk about the symptoms that I am having and see if anyone has any of these and what you think I should do.

Symptoms
off balance
shakiness but on the inside of my body
headaches
blurred vision
Raynauds Disease
Weakness
Feel like legs are swollen
Lower back pain (severe)
Ankle sometimes hurts to where I can't move it
After sitting for a period of time it takes me a while to stand up straight
tingling sensation
Fatigue
When I walk for a period of time my hands turn red and my knuckles turn white and they feel swollen
etc.

I have seen multiple neuros and have had MRI's, evoked potential test, bloodwork and they all came back negative. I had an ENG and it was abnormal. The doctor said that my brain wasn't sending signals correctly. In last examination at neuro, he had me close my eyes and march in place. I thought that I was in the same place but when I opened my eyes I was clear across the room and turned in a different direction. Which told him that I am having problems with balance.

What do you do if you know that something is going on with your body? It has been 2 years now since they started and I am to the point where I just deal with the symptoms and go on. I'm tired of being told that something is wrong but they don't know what it is. My only problem is if I can go on some medication that would help me then I want to be on some medication. This Raynauds Disease is scary because I am scared that I will lose my fingers and toes if somebody doesn't put me on some kind of medication.

I'm at a loss!!!! How do you all deal with this?????

Michelle