Originally Posted by Lisa_P
I was 36 when I was diagnosed (I'm a month away from my 40th birthday now). I went from working full time in an office then to now barely keeping up with housework and cooking! Walking down to the mailbox and back is a MAJOR accomplishment that I just can't seem to convey to anyone. I feel guilty everytime my bf comes home and asks what I did that day and I have absolutely nothing else to recount! HE'S been doing hard physical labor all day and has REAL aches and pains from it, so I can see how he discounts me....
At least I am still mobile, but still....
Ok, first off I want to say.... stop being so hard on yourself... what you are going through IS real.
MS is a cruel disease in many ways and one often encountered is that it does not manifest by turning you a strange color or with a rash or any other obvious outward sign that people can see in a glance and say "Oh, you have MS don't you?"
Instead we are exhausted or just dont have the energy and are "lazy"... we trip over nothing and drop things and are "clumbsy"... we can't see things easily at times and are "not paying attention"... we forget things easily and are "scatter brained"... and we have aches and pains and are "just looking for attention".
Yes, your bf does hard labor all day long and has real aches and pains... but you are dealing with a disease that makes every day living feel like climbing Mt Everest at times and you should not discount what effects it has on you. Be proud of the accomplishments you do have... today you got to the mailbox when it was a marathon achievement, let yourself feel pride in that. You vaccumed the carpets even though it took all day but dangit, you did it!
My mind is skirting around the types of MS (so forgive me if I get this wrong) but you may have primary progressive (?) MS, my advice would be to talk to your neuro and see if there is anything he can do to help make thing easier, and get some MS facts printed up or sent to you for evening reading for the bf, or take him with you to the doc.
Good luck and remember... you have MS, it does not have YOU