Does any one have relapse remitting kind - Multiple Sclerosis Message Board

simbamojo01 · 10-30-2006, 06:12 PM

My wife was recently dx'd (w/in the last 5 yrs) with relapse/remitting MS. She has numbness in her hands and feet that after the lates bout which happened about two years ago, has not gone away. Her symptoms started with a numbness in the feet then the hands then went up her legs to about mid torso. The "band" rested about mid torso and around the chest area. Then decided to just reverse itself one day and go away the same way that it came on. That was the second bout in about 10 years that it was that severe.

Now she is left with the feet and hands constantly numb. She gets increased numbness in the feet and hands anytime she ingages in physical activity. The neuro said she could have a case of benign MS since she has only had the two severe bouts in that time. While we are greatful for this blessing in reading the other more severe stories, I know God has truly blessed us.

I was just wondering if anyone out there had the same or similar kind of MS.

Please respond only if you are an adult.

topjars · 11-05-2006, 01:06 AM

Yep Im an adult (50)

and have relapsing remitting ms too.
Ive been dx a few years now and its fair to say that the REBIF Ive been on has curbed further attacks.
Ive similar symtoms...
Spasms in legs (normally when Im sitting or lying in a relaxed state) numb fingers and foot on RH side and a tingling/numb/woody feeling in LH side thigh.
I consider myself "lucky" that Im still able to get around.

PS:Ive been back from an o/seas trip to the States 16 weeks now and I survived the heat / fatigue associated with MS-never made Arizona but enjoyed California,Houston and Nevada

Hang in there and get on REBIF,fishoil and the odd bit of MJ

Gary

MSNik · 11-05-2006, 05:09 PM

Hi Simbamojo01-
I just wanted to tell you that 85% of MS patients have relapsing- remittant MS. If you need more info on the stats, please look into the national ms society. They give the most complete and correct info.
You definately want your wife to have this type....although her symptoms sound very difficult, and I can identify. Ive only had the numbness and burning (its called Parastastia) for 3 months, its not going away at all.
My docs are more concerned with me having Progressive MS, which is only about 15% of MS cases. Thats the one you dont want to have! IT cannot be treated with disease modifying drugs. As Gary said, I too, am on Rebif, and love it..at least, I love the fact that I am doing everything I can do to keep this at bay...They dont know for sure if mine is Progressive or Remittant/relapsing..so in the meantime, they keep me on this Rebif, in order to try to keep relapses away. So far, so good, but I have only been on it for a few months. MRI;s tell the tale, and since you only get one every 6 months or so, I have some time to go before I find out if the Rebif is working or not.
Gary is right though, get her on a drug, whichever one is right for her, and fishoil isnt a bad idea either, its an anti inflamatory which seems to help alittle bit. Neurontin is a drug which also is used to help the numbness....you need to talk to her Neuro about all of this.
Good luck, God bless and keep us posted!
Nikki

Erica Kane · 11-06-2006, 05:44 AM

Hi,

I have RR MS too. Diagnosed in 1990, still walking today.

My case is really an interesting one. If you looked at me right now, you wouldn't have any idea I have MS, but when I have an exacerbation - I look like someone with a severe spinal cord injury. Can't walk, lift a fork, get dressed by myself - I'm a mess. I'm like a living, breathing miracle the way I come out of these things, I even amaze myself.

MS is a funny illness. You really can't let the bad days get you down, because you never know what's around the corner. Remission is bound to happen in time - so you have to hang in there.

dgibson70 · 11-06-2006, 07:21 AM

My doctor is certain I have MS, most likely relapsing-remitting, but can't definitely diagnose me as I've only had one attack. Even though I'm only probable MS, he's certain enough that he has me on Avonex. I've done quite a bit of research and it seems that the majority of people with the RR kind remain ambulatory throughout their lives. Of course there's the occasional bout of unstable walking or being wheelchair bound, but most go into remission and are back to as normal as you can be with this disease again. That's the good thing (if there is one) of RR, you do have periods of no symptoms and those periods can last years. Your wife just might be one of the lucky ones who goes months to years in remission.

Good luck to her and you and keep posting - it does help!