The Twitching, Burning, and Tightening (new) are back! - Multiple Sclerosis Message Board

Blessed4Life · 11-07-2006, 02:46 PM

I have been away for a few months. After my last visit to the neuro, I just couldn't take being made to feel like a crazy person any more. I decided to just ignore my aches, pains, and weird feelings and pray that they would go away. On August 22nd I put down my journal and didn't pick it back up until yesterday. For most of the past few months, I have had things pretty easy. An occasional finger twitch, shock in my hand, trembling lip, or a pesky "headache" but nothing unbareagble. Then about two weeks ago, things changed. It started with left hand. It felt like electricty was being run through it. Then my legs joined in with trembling muscles. That was followed by more aggressive twiching in my face (upper lip and nose). That was followed by tightening in my upper right thigh muscle. I was sitting at work and suddenly my thigh felt like I had been working out the gym for a few days. Now today, I have shock waves in my right arm running into my hand. And as I type this, the tip of my ringfinger has feels like someone is sticking me with a stick pin.

I am so tired of these feelings that no one can see and no one takes seriously. I know that I need to start journaling again, but I just dread feeling like a crazy person when I see the neuro in a couple of months.

Michelle

shellymay · 11-07-2006, 03:09 PM

Blessed4Life,

I know exactly what you mean. Why do doctors not want to listen and just assume we are crazy. I was told that maybe I needed to write down all my symptoms for when I go to the neurologist, so in case I forget something, I have it all written down. The neuro told me that from seeing a list of symptoms as I had written down it makes him think of depression. What the &*## is that about? You can't win for losing with these guys. I'm sorry that you are having problems also. I am also the same as you with just forgetting it and dealing with my symptoms. I haven't been to a doctor since July and have just been dealing with the symptoms. But enough is enough and I am going to go to yet another neurologist and see what he says. I am not crazy there is something wrong and someone is going to listen to me.

Michelle

Blessed4Life · 11-07-2006, 06:35 PM

Michelle,

If only we could get them to stop thinking "psycho". I actually began to think that about myself as I would journal my symptoms. I wondered if they were become my frequent and more aggressive because I was writing them down. I wondered if there were things I was writing down that shouldn't have been written. But then, what if I left something out that should have been put in. This is so frustrating.

Michelle

shellymay · 11-07-2006, 07:51 PM

Michelle,

I totally agree!!! Let me tell you!! I went to the ER one night my symptoms got so bad and I was starting to have panic attacks because I didn't know what was happening to me and they doped me up with serequil and put me in the psych ward. That medication threw me for a loop. The next day I still wasn't right and couldn't get out of bed. They called for lunchtime and I called the nurse and asked her if she could bring it to me because I still couldn't stand up straight from the medication and she told me that they didn't do that here that you had to come get your own food. My husband wasn't allowed to visit me but only from 1:00pm to 3:00pm and when he got there at 1:00pm, I told him to tell them that I was checking myself out. I left. You here this alot with people who are having MS symptoms and the doctors treating you as psych patients. Why can't they just listen to us!!! We know our bodies better than they do.

Michelle

MSNik · 11-07-2006, 08:22 PM

HI Michelle and Michelle. I just want to say I feel so bad for both of you! And, I do not understand why you are being made to feel like you are....the symptoms you describe are so very common with MS...you both need to find new Neuro's possibly MS SPecialists and start over! I have very many of the exact same symptoms, which come and go...however I am now on Rebif, was diagnosed in less than 3 months time, and am getting the best care possible. Everyone deserves good care..find it!
Nikki