I finally was able to get my ENG test results. After having the ENG the ENT doctor told me that my brain wasn't sending signals on the right side of my body correctly and that he suspected MS. He sent the results to my neurologist and do you want to know what he told me? He told me that he didn't know how to read those test so it was of no use to him. What a qook!! Just wondering does anyone know what it means when the test says that I have caloric weakness of 89% in my left ear and directional preponderance of 51% in my left ear? Just curious because I know that some of you guys have had this test and didn't know what yours had said. Thanks for your replies.
Your right your neuro is a qook.First of all all he had to do is read the ENT's report.From your statement caloric weakness and direction perponderence of left eye , this is what I was able to find there's a possibility of lesions of the central vestbulocular pathways.The ENG can detect abnormalities in locations but not in specific sites.
I would personally suggest that you either seek a new neuro or a neurOtologist.If you have not had evoked potentials I would really try to push for them.These test can provide more information and confirm the ENG.
Do you see this neuro for a follow up?Have you had other abnormal test?
Thank you so much for your reply. When you say that you found that there is a possibility of lesions of the central vestbulocular pathways where did you find this out at? I have pulled up everything that I can think of on the internet about this. Do you know if these lesions be seen in an MRI or not? I am in the process of seeking a new neurologist, but what is a neurOtologist? I have an other evoked potential test and I had the one where you look at the tv with the block maze and they put electrodes on your head. I don't know what it is called but I was having a hard time doing this test because of my dizziness and the technician put in her report that I was uncooperative. It wasn't that, I couldn't do it due to my problems. I did not see that neurologist again. I'm sorry that I have not replied but I think that I am having a relapse. Just 2 days ago I started getting dizzy spells again and my legs hurting and feeling swollen. Tingling in my arms and my hands hurting. I have also been having trouble with my right jaw going numb. Could this be a relapse?
Have you been diagnosed with MS Nuffs3? How are you doing with your symptoms? I do agree with you. I hate it too when neuros have to act like jerks!!! It seems that alot of them are too!!! What is up with that?
I had partial transverse myletitis in 1998 and was told I had MS then.I disregared the DX do to I had just had a lumbar surgery that didn't go well .I thought that was the reason I couldn't walk for 11 months.
I had an ENG/VNG about 3 weeks ago,I had a brain MRI a week before that.The VNG came back abnormal with peripheral and central damange.Lesions in left cerebral hemisphere and the brain stem.Which accounts for all the right sided problems.My recent MRI did not detect these lesions.Microscopic lesions normally don't show on MRI's.
A neurOtologist will help with the dizziness and explain the ENG.He can do everything a neuro and an ENT can do.
Google---ENG/VESTBULOCULAR Disorders also google caloric testing.
You could be having a relapse.My neuro considers a relapse,symptoms that are new and persistant and extreme.
I'm handling my symptoms daily.I have mildly progressive MS.My symptoms hang around daily some days they are barely noticible and others they make there apparence known.My worse symptoms are my right leg cordination and problem with ocular movement in my eyes.If I move my eys to the left they move back and forth.A pendulam swing or they get jerky.Some days the left eye don't move.My hearing has been affected.I've lost 35% in both ears.Rare in MS.Muscle spasms can be severe but controlled by meds.The ringing in my ears can create havoc.
I had the VEP(visual evoked potential) I didn't care for it.Mine came back borderline abnormal.Since I've had the ENG/VNG i'm gonna ask my neuro about the other evoked test baer.For the brain stem,being lesions on the MRI didn't show up in that area.
Since you got no results from your neuro,contact the ENT that done the ENG and ask for a referral to a neurOtologist.Meclizine(antivert) can help with the dizzy spells.
Hang in there.Since the criteria(McDonald) has changed for diagnosing MS,its harder to get neuro's to actually see the symptoms.MRI's are now the golden standard.Not all neuro's go by the standard criteria's.I was diagnosed with a clear MRI.Brain atrophy,clinical for beginning MS.Lumbar puncture--high myelin basic protein(many neuro's consider non-specific)demyelination occuring.Evoked potentials borderline abnormal.My neuro went off all the test and symptoms.Everything else had been ruled out.
There are several great neuro's out there,you will find one.
I can't thank you enough for your response. You have explained more to me in the past few minutes than I have gotten from anybody in the past 2 years. Should I ask for the doctors notes about my ENG test? All I got was the actual test and that's where I got the caloric weakness and directional preponderance results. I'm sorry for all your problems and I hope that you are doing well. Yes, you are right there are several great neuro's out there and I will keep looking till I find one.
You should get copies of all your test results including all the DRs. clinic notes.When you seek a new neuro you can make copies and present him with all of them a head of time.I am doing well I do my best to ignore my symptoms and continue with daily living.MS has slowed me down some,I have limitations.If you have a teaching hospital in your area,that may be a new start for you,they'll have many neuro's there.
Thank you!! Yes, we do have a teaching hospital where I live but I always thought that going there was no good because they would use you as a guinea pig for all their experiments. But I guess it's worth a try!! Thanks again!!
