Hey Toni...just checking in....whats going on? Have you spoken to your doc? have you gotten info on starting IV ?? Im worried about you!
I spent the entire day at a NeuroOpthalmologists office, a major Neuro Science Center in NYC today..what an experience. The good news is the pain in my eye is NOT caused by optical neuritis, and my optical nerve is FINE..the bad news is they are not entirely sure what is causing it (the pain). This neuro is a big proponent in pain relief, and offered me just about any pain killer I wanted, I didnt take him up on it...I dont want drugs, I want an answer...he didnt have one. The only thing He could tell me was that after dialating my eyes, and really REALLY giving me a thorough exam, he doesnt think its going to cause vision loss, and that the pain is probalby MS related..but he has no answers...again, i feel like a nut job!
Let me know how you are..and whats happening with you..
Nikki
I have not heard about the steroids,I am calling neuro tomorrow,I have had some really strange headaches,which is really rare for me.My hearing is fading in and out.My pain in my legs from the knees down is off the wall and nothing is releiving it.I've been tears for 2 days over it.I've been taking 1000mg's vicodin,10mgs valium and 20 mgs of baclofen every 4 hours and still no releif.My left eye hurts the central vision fades in and out.Basically I'm in a whiny mood and have fought with my 2 teenagers the last 2 days for picking on my 12 year old so bad.Then she whines and it makes my pain worse.I'm ready to check into any ER that will releive the pain and to top it off I have to go out at 11:00 pm to pick my daughter up from work.My legs hurt so bad that i can't wear my leg brace or shoes.
Nikki sometimes things can't be explained.i refuse to go back to the eye DR he told me my vision has decreased do to old age.I'll be 41 Saturday and I feel about 80.
Sorry to whine.
You can whine sweetie. Really!
Youve got it tough, Toni...you have allot more on your plate than I do at the moment. Thank you for undestanding about the eye doctor....this one actually didnt say that it was age, but I have been told that before. This one felt more that it was MS related, but wouldnt confirm it, or couldnt confirm it.
As for you, please get an answer on what they are doing for you. The longer you wait to get this IV in you, the less chance you are going to have of a full recovery from this one. I know any relief of pain will be welcome, but its not just about that, its about stopping whatever is happening. THe Iv Steroids will help to do that, but only if you get to them in time....its crazy that they made you deal with this for the past week without getting you help. Since this all started you could have done a full round of IV Therapy and probably felt better!
Im going nuts too. Now, the jobs which I had applied for are starting to come through. Back when I knew I was graduating in December, I had started applying for work. I had 12 job offers yesterday, and woke up to another 5 "please call me" type emails this morning. Only two of these jobs are parttime, and both, im interested in....but even the prospect of going back to work parttime is scaring me!! I havent had a good nights sleep in so long, my mind is foggy...but, I have to try. My husband is not only sick of me sitting around the house, but financially, even if I brought in 200$ a week, it would make a difference. So, I have to try. Today, will be all about making phone calls and follow ups, trying to nail something down!! At least my huge pupils are no longer enormous and I can be seen in public again!! Last night I looked like a freak!
Okay, time for me to start getting it together. Let me know what the doctor says.
Nikki
Thats awesome!Select the job that is perfect for you and that you can handle with your MS.
I'm still in severe pain,talked to neuro and he is terrified about starting the steroids do to the past allergic reaction.i'm to double up on all meds for 2 days then call him back.I'm a zombie in pain.
I've not had a good day.Hubby's car broke down,had to deal with him and he is no mechanic.I told him it was the starter but didn't beleive me.it was.now gotta get that fixed.In the process of me backing out of my drive I hit my daughters X-boy friends car,so I gotta take care of that insurance tomorrow.
Just got a call from the nurse at rebif,when through all of that.Said my meds and literature should be here friday or monday.
Gotta go cellebrate my ma's birthday,I've put on my happy face,took my pain meds and away I go.
Well, at least you are making progress with your rebif...I do hope your insurance company is cooperating with it, my deductible started out at 200$ a month, and after 5 months of fighting with them and killing myself (dont you love the way we have to manage our own health care?) I finally got it down to 50$ a month..which is do-able.
I got the job...heard today, and was offered and accepted. Im scared to death!! I start on the 16th. I will be working 24 hours a week, T-W-Th, 8-4:30...here goes nothing!
I dont understand why the Neuro is sooo worried about you and the steroids...if he is, why not have you do it in the ER? My doc had me do that once, in order not to have to wait 3 days until the nurse could come to my home...they started it in the ER, i went back the next day and by the third day, the medicine had arrived for me to do it at home.....can you suggest that? At least then, if you have a problem, you are in the right place...
take care, toni..
Nikki
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