4 weeks ago explained to my GP Doc something not right, my Mom was worried about me and wanted me to tell him that my memory gettingvery bad, left arm and leg weakness, balance off, constantly dropping things, hitting things, can't remember anything, concentration off, blurred vision, brown spot in right eye for about 1 yr.
He did a couple of tests in office, said my left side a little off, my reflex on left arm and leg hardly there. Balance off could not pass the balance test.
Ordered MRI, did extensive bloodwork--still waiting on results. Like a dummy I have been driving myself crazy because they handed my a disc at the MRI place, I think I see what are lesions, not quite sure. Compared to some on internet with MS. Sure don't have a clear scan thats for sure. Had with contrast and without. Keep leaving messages for Doc's Nurse I need to know it is driving me crazy. Have been off work since 10/26 on short term disability. Back spasms, twitching, numbness, tingling, leg pain, headaches, neck cracking all getting worse thru these past weeks. Just can't stand the waiting anymore.
Sorry so long. Just wanted to introduce a little about myself. Thanks
Sorry meant to put sad face on thread. Can't see to well!
Last edited by dxeverything628; 01-03-2007 at 09:10 AM.
It is hard to wait and for that I'm sorry. Your symptoms do sound a lot like MS but of course MS mimics a lot of things as well.... I hope they are able to come up with some answers and soon so you can start a treatment. Unfortunately, having one autoimmune disease, in your case, RA, sets you up for another one possibly. I have Type I (juvenile) diabetes. I was DX'd when I was 9, then MS when I was 24. I am hoping that things don't come in "threes."
Keep us posted on yout progress. We are thinking of you.
Have you ever been tested for Lyme Disease? If not, you absolutley should. If you have and the test came back negative doesn't mean you don't have it. No blood test is completely reliable. I was diagnosed with Lyme a few weeks ago and had some of the same symptoms you have. Lyme is a tricky disease which mimic's many other disease's.
Gina, stop trying to be a doctor! dont mean to be rude, and Im really on your side, but trying to read your own MRI? Are you kidding me?? And honestly, all you are doing is scaring yourself. It can take years for a DX of MS..some of your symtoms sound neurological, but many do not reflect MS at all...Lyme is a possiblity...you'll probably need a lumbar puncture to rule that out....so many things mimic MS...you need to stop worrying. Im assuimng you had the MRI ordered by a neurologist? If not, find one NOW. YOu may also want to take all of your test results to an MS specialist to interpret..
believe me, we all know how terrifying this is to you and we are all here for you to lean on...Just dont do the wrong thing and start researching every litttle ache and pain...a good doctor will tell you NOT to read about MS or look things up on the web...when the web is federally regulated, maybe the information will ALL be honest and correct, but right now, there is more junk on it than truth..stick with facts...look at the national MS sites if you need to look at anything...ask as many questions as you want here...but do not scare yourself or fool yourself into interpreting test results...it will only mess with your head..
We are here for you.
I noticed you are in IL!
I am in chicago! my awful neuro is at northwestern, and i got the MRI done there (which was great)
I've heard good things about Rush and Univ of Chicago too.
Let me know where you are and we can compare notes! :-)
Thank You all so much for your replys. MSNik you are right I know I'm not a dr. It's just been weighing really heavy on me. I was tested for lupusl lyme, thyroid probably 6 yrs ago. But I don't know I just can't seem to think that it is MS. The more and more symptoms I have the more and more I feel I was misdiagnosed with fibro in 99. I have more of the MS symptoms than the fibro. I just feel this flare up is different and I have been explaining away my symptoms for quite some time now. My GP ordered the MRI, then said we would do other tests after that, the EVG I think it is, memory test, and then we would go from there. I just can't help but think that he is putting me off until I see him again on 1/14. Thanks for listening everyone. You all are a very nice group of listeners and alot of help.
I'm actually in Joliet not to far away from Chicago. I do have a Neuro. here but I was seeing him for my Migraines years ago. I don't know if I should wait to see what my GP Doc tells me about my MRI before I go to Neuro or if I should just make an appt. I don't want to jump the gun or step on my GP's toes so to speak. He is wonderful and has been here for me a great deal. But we definetely compare notes. By the way have you been dx'd with MS?
Talking to GP is alright,anxiety can get the worse of us when waiting on results.Usually a GP will just reveiw the report.A neurologist usually reads the actual MRI's,if this is a neurological disorder you'll need a neuro anyways.making the appointment now may insure you getting a quicker appointment.
I have an awesome GP,but my neuro's knowledge in MS definatly out weighs my GP's.Before I start any new med I always check with my GP,I value his opinion.
Hang in there,if you are curious about the MRI report you contact the facility that done the MRI and ask for a copy of the report.In all honesty keeping records and copies of MRI's will be in your best interest.Also keeping a journal will aide you and DRs.