Maybe MS, introduce myself. - Multiple Sclerosis Message Board

dxeverything628 · 01-03-2007, 10:06 AM

Hi My Name is Gina,

I just wanted to introduce myself. Have been surfing for about 4 wks. now. And reading all your wonderful posts. Here's a little about myself. Sorry if this becomes long.

dx--rheumatoid arthritis 5/83
Heart attack/gall bladder attack 2/98
dx--ulcerative colitis, gerd, stomach ulcers 10/98
dx-fibromyalgia, cfs, bursitis 2/99
restless leg syndrome
sleep problems
UTI's
numbness, tingling
twitching, spasms everywhere

4 weeks ago explained to my GP Doc something not right, my Mom was worried about me and wanted me to tell him that my memory gettingvery bad, left arm and leg weakness, balance off, constantly dropping things, hitting things, can't remember anything, concentration off, blurred vision, brown spot in right eye for about 1 yr.
He did a couple of tests in office, said my left side a little off, my reflex on left arm and leg hardly there. Balance off could not pass the balance test.
Ordered MRI, did extensive bloodwork--still waiting on results. Like a dummy I have been driving myself crazy because they handed my a disc at the MRI place, I think I see what are lesions, not quite sure. Compared to some on internet with MS. Sure don't have a clear scan thats for sure. Had with contrast and without. Keep leaving messages for Doc's Nurse I need to know it is driving me crazy. Have been off work since 10/26 on short term disability. Back spasms, twitching, numbness, tingling, leg pain, headaches, neck cracking all getting worse thru these past weeks. Just can't stand the waiting anymore.
Sorry so long. Just wanted to introduce a little about myself. Thanks

Gina

Sorry meant to put sad face on thread. Can't see to well!

sunshine149 · 01-03-2007, 02:37 PM

It is hard to wait and for that I'm sorry. Your symptoms do sound a lot like MS but of course MS mimics a lot of things as well.... I hope they are able to come up with some answers and soon so you can start a treatment. Unfortunately, having one autoimmune disease, in your case, RA, sets you up for another one possibly. I have Type I (juvenile) diabetes. I was DX'd when I was 9, then MS when I was 24. I am hoping that things don't come in "threes."

Keep us posted on yout progress. We are thinking of you.

cappy7 · 01-03-2007, 04:31 PM

Hi Gina,

Have you ever been tested for Lyme Disease? If not, you absolutley should. If you have and the test came back negative doesn't mean you don't have it. No blood test is completely reliable. I was diagnosed with Lyme a few weeks ago and had some of the same symptoms you have. Lyme is a tricky disease which mimic's many other disease's.

Good Luck.

MSNik · 01-03-2007, 04:42 PM

Gina, stop trying to be a doctor! dont mean to be rude, and Im really on your side, but trying to read your own MRI? Are you kidding me?? And honestly, all you are doing is scaring yourself. It can take years for a DX of MS..some of your symtoms sound neurological, but many do not reflect MS at all...Lyme is a possiblity...you'll probably need a lumbar puncture to rule that out....so many things mimic MS...you need to stop worrying. Im assuimng you had the MRI ordered by a neurologist? If not, find one NOW. YOu may also want to take all of your test results to an MS specialist to interpret..
believe me, we all know how terrifying this is to you and we are all here for you to lean on...Just dont do the wrong thing and start researching every litttle ache and pain...a good doctor will tell you NOT to read about MS or look things up on the web...when the web is federally regulated, maybe the information will ALL be honest and correct, but right now, there is more junk on it than truth..stick with facts...look at the national MS sites if you need to look at anything...ask as many questions as you want here...but do not scare yourself or fool yourself into interpreting test results...it will only mess with your head..
We are here for you.

SRSuper · 01-03-2007, 05:25 PM

Hey gina!
I noticed you are in IL!
I am in chicago! my awful neuro is at northwestern, and i got the MRI done there (which was great)
I've heard good things about Rush and Univ of Chicago too.
Let me know where you are and we can compare notes! :-)