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Old 01-03-2007, 09:06 AM   #1
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Join Date: Dec 2006
Location: IL
Posts: 10
dxeverything628 HB User
Unhappy Maybe MS, introduce myself.

Hi My Name is Gina,

I just wanted to introduce myself. Have been surfing for about 4 wks. now. And reading all your wonderful posts. Here's a little about myself. Sorry if this becomes long.


dx--rheumatoid arthritis 5/83
Heart attack/gall bladder attack 2/98
dx--ulcerative colitis, gerd, stomach ulcers 10/98
dx-fibromyalgia, cfs, bursitis 2/99
restless leg syndrome
sleep problems
UTI's
numbness, tingling
twitching, spasms everywhere

4 weeks ago explained to my GP Doc something not right, my Mom was worried about me and wanted me to tell him that my memory gettingvery bad, left arm and leg weakness, balance off, constantly dropping things, hitting things, can't remember anything, concentration off, blurred vision, brown spot in right eye for about 1 yr.
He did a couple of tests in office, said my left side a little off, my reflex on left arm and leg hardly there. Balance off could not pass the balance test.
Ordered MRI, did extensive bloodwork--still waiting on results. Like a dummy I have been driving myself crazy because they handed my a disc at the MRI place, I think I see what are lesions, not quite sure. Compared to some on internet with MS. Sure don't have a clear scan thats for sure. Had with contrast and without. Keep leaving messages for Doc's Nurse I need to know it is driving me crazy. Have been off work since 10/26 on short term disability. Back spasms, twitching, numbness, tingling, leg pain, headaches, neck cracking all getting worse thru these past weeks. Just can't stand the waiting anymore.
Sorry so long. Just wanted to introduce a little about myself. Thanks

Gina


Sorry meant to put sad face on thread. Can't see to well!

Last edited by dxeverything628; 01-03-2007 at 09:10 AM.

 
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Old 01-03-2007, 01:37 PM   #2
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Join Date: Jul 2004
Posts: 607
sunshine149 HB User
Re: Maybe MS, introduce myself.

It is hard to wait and for that I'm sorry. Your symptoms do sound a lot like MS but of course MS mimics a lot of things as well.... I hope they are able to come up with some answers and soon so you can start a treatment. Unfortunately, having one autoimmune disease, in your case, RA, sets you up for another one possibly. I have Type I (juvenile) diabetes. I was DX'd when I was 9, then MS when I was 24. I am hoping that things don't come in "threes."

Keep us posted on yout progress. We are thinking of you.

 
Old 01-03-2007, 03:31 PM   #3
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Join Date: May 2006
Posts: 184
cappy7 HB User
Re: Maybe MS, introduce myself.

Hi Gina,

Have you ever been tested for Lyme Disease? If not, you absolutley should. If you have and the test came back negative doesn't mean you don't have it. No blood test is completely reliable. I was diagnosed with Lyme a few weeks ago and had some of the same symptoms you have. Lyme is a tricky disease which mimic's many other disease's.

Good Luck.

 
Old 01-03-2007, 03:42 PM   #4
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: Maybe MS, introduce myself.

Gina, stop trying to be a doctor! dont mean to be rude, and Im really on your side, but trying to read your own MRI? Are you kidding me?? And honestly, all you are doing is scaring yourself. It can take years for a DX of MS..some of your symtoms sound neurological, but many do not reflect MS at all...Lyme is a possiblity...you'll probably need a lumbar puncture to rule that out....so many things mimic MS...you need to stop worrying. Im assuimng you had the MRI ordered by a neurologist? If not, find one NOW. YOu may also want to take all of your test results to an MS specialist to interpret..
believe me, we all know how terrifying this is to you and we are all here for you to lean on...Just dont do the wrong thing and start researching every litttle ache and pain...a good doctor will tell you NOT to read about MS or look things up on the web...when the web is federally regulated, maybe the information will ALL be honest and correct, but right now, there is more junk on it than truth..stick with facts...look at the national MS sites if you need to look at anything...ask as many questions as you want here...but do not scare yourself or fool yourself into interpreting test results...it will only mess with your head..
We are here for you.

Last edited by MSNik; 01-03-2007 at 03:43 PM.

 
Old 01-03-2007, 04:25 PM   #5
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Join Date: Sep 2006
Location: Chicago, IL, USA
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SRSuper HB User
Re: Maybe MS, introduce myself.

Hey gina!
I noticed you are in IL!
I am in chicago! my awful neuro is at northwestern, and i got the MRI done there (which was great)
I've heard good things about Rush and Univ of Chicago too.
Let me know where you are and we can compare notes! :-)

 
Old 01-03-2007, 05:41 PM   #6
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Join Date: Dec 2006
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dxeverything628 HB User
Re: Maybe MS, introduce myself.

Thank You all so much for your replys. MSNik you are right I know I'm not a dr. It's just been weighing really heavy on me. I was tested for lupusl lyme, thyroid probably 6 yrs ago. But I don't know I just can't seem to think that it is MS. The more and more symptoms I have the more and more I feel I was misdiagnosed with fibro in 99. I have more of the MS symptoms than the fibro. I just feel this flare up is different and I have been explaining away my symptoms for quite some time now. My GP ordered the MRI, then said we would do other tests after that, the EVG I think it is, memory test, and then we would go from there. I just can't help but think that he is putting me off until I see him again on 1/14. Thanks for listening everyone. You all are a very nice group of listeners and alot of help.


 
Old 01-03-2007, 05:44 PM   #7
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dxeverything628 HB User
Re: Maybe MS, introduce myself.

Hi SRSuper,

I'm actually in Joliet not to far away from Chicago. I do have a Neuro. here but I was seeing him for my Migraines years ago. I don't know if I should wait to see what my GP Doc tells me about my MRI before I go to Neuro or if I should just make an appt. I don't want to jump the gun or step on my GP's toes so to speak. He is wonderful and has been here for me a great deal. But we definetely compare notes. By the way have you been dx'd with MS?

 
Old 01-03-2007, 07:00 PM   #8
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Join Date: Jul 2005
Location: ohio
Posts: 2,467
duttin HB Userduttin HB User
Re: Maybe MS, introduce myself.

Gina,

Talking to GP is alright,anxiety can get the worse of us when waiting on results.Usually a GP will just reveiw the report.A neurologist usually reads the actual MRI's,if this is a neurological disorder you'll need a neuro anyways.making the appointment now may insure you getting a quicker appointment.
I have an awesome GP,but my neuro's knowledge in MS definatly out weighs my GP's.Before I start any new med I always check with my GP,I value his opinion.
Hang in there,if you are curious about the MRI report you contact the facility that done the MRI and ask for a copy of the report.In all honesty keeping records and copies of MRI's will be in your best interest.Also keeping a journal will aide you and DRs.

 
Old 01-03-2007, 07:11 PM   #9
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Posts: 83
NathanMc HB User
Re: Maybe MS, introduce myself.

Hi Gina,

Keep looking for answers but do try to stop and smell roses or taste sunshine or kick kittens or whatever makes you smile!

Good luck

 
Old 01-03-2007, 07:46 PM   #10
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Join Date: Dec 2006
Location: IL
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dxeverything628 HB User
Re: Maybe MS, introduce myself.

Nuffs,

Thanks for the Info. I will wait to see what he says. In the mean time I will call to get a report for my records, and make an appt. with my Neuro. to get things started. Thank You.

Gina

 
Old 01-03-2007, 07:47 PM   #11
Junior Member
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Join Date: Dec 2006
Location: IL
Posts: 10
dxeverything628 HB User
Re: Maybe MS, introduce myself.

Nathan,

Thanks so much for your reply!! I will do that. Sounds like a great idea. I just loved your little schpeal there. (not sure if spelled that right). lol.

Gina

 
Old 01-05-2007, 09:02 AM   #12
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evergreen33 HB User
Re: Maybe MS, introduce myself.

Gina,

I don't understand. They gave you your MRI results without an analysis? Why would they do that???

 
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