Gina in Joliet
Hey Gina-
To reply-
no i havent been dx'd. I've been on this journey almost 13 years but my neurological stuff that made one of my docs think MS started just a year and half or so ago.
right now i have a diagnosis of nothing. not fibro, not cfs, not b12 deficiency, not general neuropathy.
it SUCKS.
im hoping that when i see the clinical neurologist tomorrow and tell him that half of my face is numb, he will tell me something! UGH
so anyway.
yeah dealing with GPs can be hard. thank heavens i have PPO insurance and i dont need a GP to "manage" my care. she sent me to a shrink. and the shrink sent me to a neurologist! WHAT!?
oy vey.
doctors hate to be told. as House, MD once said "ooh look! someones been on the intraweb!" but i dont understand how i can pull up reputable sources (journal of neurology, johns hopkins reports, etc) and then have docs tell me "nope, doesnt exist." but my GP hated being told what i thought about my own condition.
so its a hard game to play. sucks that we have to play it at all.
i would definitely recommend having more than one person looking at your MRI if you or the GP notice ANYTHING that isnt pristine. most people by puberty will have a blip here and there in the brain, but you NEVER KNOW.
i would say hold off until getting the neuro opinion until you know what your GP says. at least then you can walk into the neuro saying "i was un/comfortable with my GP....blah blah blah" rather than just not being sure of anything.
if youre ever in chicago, we should compare notes on windy city medical care :-)
please hang in there and take care! enjoy this "warm" weather while we have it, right?
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