Hello I am a new member.
I am in a great confusion right now. My problems started in August 2007 with double vision. My vision went back to normal after 5 days, then my left leg and right arm went num. After a month my back and legs started numming when I was walking. I had MRI scans in the brain, cervical and thoracic regions, which showed 5 lesions, one of them active. I had for 3 days Solumedrol, but It did not have any improvement on me. In December I started getting better. I repeated the MRI scans, which showed the exact same lesions as in August but still one of them active. Is possible a lesion to be active for 4 months?
The doctors say that they are not positive I have MS. Some of them say I should start medication, others say I should wait. One say I should take Avonex the other Copaxone.By the way I am 31 years old, it has been a year since I got married, and I would like to get pregnant. But then I think I should start medication and see how It goes and then get pregnant. Or If my child will have the same problem with me.
At last, although my vison now is fine and the nummimg day by day goes away, I have pain in my legs and arms lasting a few seconds. Does any know what will happen after 5 or 10 years? Will I be able to raise my child if I decide to have one?
You should be talking to a specialist..but since you arent, Ill give you some information which you can take back to him or her and talk about..
First of all, the decision to go on a drug...all of them have their benefits and side effects..however, are you even diagnosed wth MS for sure? Its unlikely that anyone would put you on a drug unless they are certain that you are diagnosed, and even more unlikely insurance will pay for it unless you are..I have only been married 3 years, at the time I was diagnosed, less than 6 months ago, I was trying to get pregnant. I was told ABSOLUTELY NOT to get pregnant, and in fact, my doctor is now trying to get me to have a tubal, which I am fighting...
You cannot get pregnant on any of the drugs for MS THerapy. Yes, you can go on them, and then go off, and then get pregnant. Heres the thing...you should be off of them at least 6 months before you get pregnant- and most of the time, while you are pregnant, the fetus protects the mother from relapsing....the chances of you giving your child MS, are less than 3%....and the chances of you having a relapse the day after you deliver are very high. If you were previously on MS drugs, they will probably start you on them the minute you deliver, which means you cannot breast feed..but hopefully it will eitther prevent a relapse, or lessen it...
Now, you need to decide, there is absolutely NO WAY anyone, doctor, or any of us, can tell you how fast your disease will progress. I was diagnosed with Remittant/relapsing 6 months ago, have been on Rebif for 5 months, and have had 2 more relapses ever since, thus now my doctor is calling my disease progressive. things have happened that you dont even want to know about in the past 6 months. (I dont want to scare you). I know without any doubt, that there is no way I can chase an infant around the house at this point, the reality is horrible. I hate the fact that this happened to me shortly after I met the man of my dreams.....but then again, looking at how he is handling the diease, he may not be the man I thought he was...maybe he wasnt meant to be a father, either...I dont know. Its very confusing.
I would say this, if you plan to get pregnant, talk it over with your Neuro, and Gyn carefully, and dont start the drugs right away...its not going to be worth it to start it, and then go off them..and YOU absolutely CANT get pregnant on them..so,that means, using birth control, which might even slow down your ability to get pregnant when you do try again...get pregnant now and start the drugs later..or give up the baby idea....you dont know where youll be or how long it will take..
Others have children, both before and during their diagnosis, they will tell you that children are what keeps them going. That may be, for some- for me, Ive progressed too fast to keep up the dream...Im not happy at all about having MS, or being on Rebif..or being chilldless...but they say everything happens for a reason, right?
The following user gives a hug of support to MSNik: canuckchick (07-08-2011)