Re: Numbness in toes
I think the difficulty is that you have been symptomatic with small changes in the brain that can not be detected by MRI. It takes time for the leisions to become apparent and MS has long been difficult to diagnose. You have to have two seperate attacks before they can even begin the diagnostic process. So it does not mean you are lying, or crazy, or that your doctor is incompentent. Its just that the medical roots of this disease are just beginning to be understood and the tools the have to aid with diagnosis are imperfect.
They way I look at it is, we are fortunate compared to those before us. 15 years ago there were no disease modifying drugs and people were given a much more hopeless picture. Even though the treatments that are offered now aren't without side effects, at least they are gaining a better understanding of the disease process. New advances are occurring and who knows what will be available around the corner.
As for symptoms and no diagnosis...it is hard. Keep a record of your symptoms, keep in touch with your physician and hopefully you will have a diagnosis as soon as it can be made. That will facilitate treatment options.
This is an awful disease process. It is frusterating for us who struggle with ever changing symptoms, and it must be difficult for physicians who wish they could help and come to a more expedient diagnosis.
Until then we can only do the best we can to offer each other support, encouragement and wisdom. Try to maintain your hope!
Last edited by Kim_blessed; 01-31-2007 at 12:20 PM.