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Old 02-08-2007, 12:05 PM   #1
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back to square one

Just venting. Had an MRI and it showed nothing. My doctor had ordered it with and w/out contrast. They only did without and said it was because they saw nothing suspicious that warranted doing it with contrast. (Does this sound right? Do they only do MRIs with contrast if they see something at the time of the procedure that looks suspicious?)
Anyway, since the MRI was deemed clear (except for some polyps--I forget exactly what it said but when I looked it up it appeared to be sinusitis related), I am back to square one and no one will tell me how to procede. My primary is moving out of state and I'm just so fatigued, the thought of starting this all over again with a new doctor is just killing me. I haven't seen the neurologist yet but I have an appt next week. I'm so afraid that with a clear MRI and no other diagnosis, he's going to just send me on my way or tell me it's all in my head. Something is clearly off and no doctor seems to want to pursue it. I am so fatigued I can barely function, dizzy every day and my cognitive issues get worse by week. The pins and needles come and go, as well as the other odd symptoms. Lately my eyesight has been getting super blurry, but I don't know if it's my contact lenses that are the problem. (Anyone else wear contacts and have vision issues?) But I don't know if I have the strenght to continue pursuing this. If my MRI was "unremarkable" what do I do next?
Thanks for listening. This board has been a tremendous help.

 
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Old 02-08-2007, 01:31 PM   #2
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Re: back to square one

I know exactly how you feel as my neurologist dismissed everything without even doing any tests!!! So the positive is you've had the MRI- there are plenty of people I've read about who have a clear MRI then later go on to get a dx, or you may not have MS. BUT what ever the situation is- you're have having these symptoms that are affecting your life and are NOT all in your head!!! I know how hard it is when you feel too weak to fight- and I gave up at first- but regret it now! Wish I'd got a second opinion! Have you got someone who will go with you to the neurologist appointment? I think it's so important if you can go with someone- I was by myself and too shocked to be able to stick up for myself! Write down any questions before you go in, and think about if he says it's not- what's the next step/ what might it be? Don't let him dismiss you- and if he does- ask to see someone else. It's your right to find out what's wrong!

I really wish you the world of luck! x

 
Old 02-08-2007, 03:10 PM   #3
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Re: back to square one

Thanks Nixi! You know, I gave up too once before, two years ago when I got tired of being humiliated and back then they wouldn't even do the MRI so I guess I have made progress! After I decided I couldn't live like this anymore I went to a psychiatrist, and thankfully she has assured me my problem is not depression. She's been great about telling me to keep pushing for answers, but it seems like pushing doesn't help sometimes. Too many doctors want to just dismiss what they can't immediately identify.
I've written out a lot of stuff for the neurologist, as many symptoms as i can remember, all the "home remedies" I've tried to feel better that didn't work, as well as a list of supplements I take and a brief overview of my diet. If it's not MS it's something, and you're right, I should keep searching for answers!
Thanks again for your words of encouragement

 
Old 02-08-2007, 04:24 PM   #4
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Re: back to square one

Remember this neuroloogist is not your GP.Many are willing to listen to their patients and often require there own set of tests.

Usually MRI's are done with contrast and without.

Take the films to the neuro appointment,let him decide if there are abnormalities or not.

There's many test that dtermine MS and not every neuro uses the gold standard MRI.

It took me 4 neurologist to get a DX.My NRI's were clear for lesions has atrophy consistant with MS,and all other test were abnprmal and consistant with the MS.

All Drs are different and have different approaches to dealing with a MS DX.Its one heck of a bumpy road.If you chose to give up on a search for answers do it on your choice,not by the discouragement of the medical field.

It took terri garr 20 years to get a dx and montel wolliams over 20 Drs to get a Dx.These people had the finances to the best MDs,and still had difficulties with a DX.

This disease isn't an easy dx.

 
Old 02-08-2007, 04:38 PM   #5
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SRSuper HB User
Re: back to square one

oh hunny i totally know how you feel.
i am in that boat with you. ive had abnormal symptoms in one way or another for over 14 years.
someone just recently said MS and i just had my 2nd MRI which showed nothing different than the first. i went in the first time with numbness/pain and some vision changes.
in 6 months i have developmed dizziness spells/nausea, facial numbness/twitching, tremors and more serious eye changes.
but no MRI difference.

please hang in there. remember that no matter what people say to dismiss u or tell you youre nuts, you know your body best.
try and find a good chiropractor or dizziness specialist to address your symptoms and quality of life.

 
Old 02-09-2007, 09:29 AM   #6
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Re: back to square one

Try, if at all possible, to get a neurologist who specializes in MS (this may take some research on your end to locate one). The first neuro I saw said it was a virus; the MS doc saw the exact same data and said MS. Good luck and keep us posted.

 
Old 02-09-2007, 09:56 AM   #7
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Re: back to square one

Thank you to all of your for your words of advice and encouragement! I don't want to cancel my neuro appt because it took so long to get it, but I will also keep in mind that I don't have to stick with him if he is dismissive or doesn't listen to me!

 
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