Tysabri reactions? - Multiple Sclerosis Message Board

purplegolfer · 03-04-2007, 12:03 PM

Background- diagnosed with MS by MRI and LP 8 months ago. Neurologist didn't want me on anything since Tysabri was coming back on the market and he likes the results from the studies (except those two little pesky deaths from PML). Getting first infusion in a week and looking for some real info on how I will feel after. Have very few symptoms on a daily basis and still working as a manager in a large restaurant so needless to say I really need to know how my energy level is going to be affected. Anyone have any insight?

Barbbelle · 03-04-2007, 02:51 PM

Hi! Tysabri is a very positive med. What I mean by that is it won't make you sick like alot of other MS drugs do. It takes an hour for the IV Tysabri to infuse and then 1 hour for them to monitor you with a saline drip. I am usually at the hospital for 3 hrs from start to finish. Occasionally, I ask for gingerale because of slight nausea (only twice). I feel great leaving the hospital, but I usually go home and rest. I definitely wake the next day feeling better. You shouldn't have any problems working! I hope this helps and let me know how you are doing, ok? Barb

purplegolfer · 03-05-2007, 07:21 AM

Barbbelle- THANK YOU for the info. I like the "Touch Program" but they wouldn't give me any other info than what is posted on the website. Hives or a rash i can deal with but I really needed to know if I should schedule a day off after for tiredness. You have taken a load off my mind!! I'll keep you posted...

Natatude · 03-14-2007, 08:17 AM

hello,,, i am just now reading this, since i wasn't phsyically or even mentally able to deal with the computer or talking about MS till now,, how did u deal with it afterwards??? my neuro wants me to start this asap, but i am scared of it, so he told me to do some research myself and let him know what i want to do when i see him again on May 1st.

candle66 · 03-16-2007, 05:14 AM

I thought only Tysabri was prescribed for progressive MS.

I am surprised your doctor put you on it right away. personaly, I would try other treatments first.