Newbie - diagnosed today :( - Multiple Sclerosis Message Board

Pinkfairy24 · 03-05-2007, 05:50 PM

Hello all, thanks for being here.

Have been suffering with a weakness in my legs for about two years and recently my balance was badly affected along with my right arm. I couldn't hold or pick anything up with my right hand which really worried me so i finally went to see my GP.

I am a staff nurse and did kinda think that it could be MS related but didn't really look into being diagnosed with it

I had my MRI results today, the consultant said that i had patches on my brain and spinal cord but i don't think that i was really listening. I haven't taken anything in yet and am really scared about what happens next.

I think that i need to go back and ask her if i can see the MRI scan as i'm not taking any of this in at all. I know that there are worse things and that there are meds which i can take. But my mind just won't accept and understand that she did diagnose me today. I'm having a really bad time here trying to relate this to myself.

Just so dam lost. Sorry.

amy2705 · 03-05-2007, 06:54 PM

Hang in there! It gets less overwhelming with time. And as bad as it seems, it's not as bad as you're probably imagining. I was diagnosed this past summer and I've only just recently been able to even look at anything having to do with MS. I totally empathize with the numb feeling, I'm still feeling a bit numb myself (when I finally worked up the courage to look into it, I realized I didn't even know how to spell it!) .... but I promise that it will get better and things will start to make more sense.

((((((Big hugs))))))

Pinkfairy24 · 03-06-2007, 04:17 AM

Thanks for your reply. I guess that it is starting to make a little sense now, am just so worried as i don't want to get so unwell that i can't work. Nursing is everything to me

I already have a strange eye condition (keratoconus) luckily that is known as KC as i couldn't spell that at first either. I went blind for seven months the summer before last, i didn't think that i would ever see again

Now i'm panicking that i will lose the ability to walk or use my hands.

Am driving myself mad i think so i should stop looking things up online.

Are there any nice info sites which won't panic me? Am waiting to see a MS specialist to discuss drugs etc. Are these to try to prevent further episodes?

Thanks for listening to me

Qtant36 · 03-06-2007, 09:09 AM

Pink, I was just recently diagnosed as well. It is unbelievable to me. I am in shock, and panic mode as well. I can so relate to what you are saying. On top of this, I have a buldging disc at the C5/6 level that they want to remove and do a bone fusion. None of the doctors can tell me if this is what is causing all of my symptoms or if it is MS....My symptoms for the past 6-8 months have been extreme stiffness and weakness in my legs, and that is what brought me to go to the doctors. I knew I had a neck injury from 15 years ago, but wasn't sure that was causing my leg issue because I wasn't having any additional upper body symptoms. This is so scary. On top of all of this, I don't have LTD with my current job. Long story, but I failed to sign up for it when I first hired in (stupid me) and when I tried to sign up a few years ago they denied me because of my bulging disc which at the time was giving me no problems. I shouldn't have told the truth about my past condition. So, after I get past all of this looks like I will have to find a new job with LTD because I will need that security. This is all so unbelievable to me because I have never been really sick a day in my life. I can totally relate to what you are going through. Just know that you are not alone.

Boombaby310 · 03-06-2007, 01:26 PM

Hi,

I was diagnosed over 9 years ago. I can still remember the day. The neuro I had at the time didn't have any bedside manners. He came in told me I had MS and then turned around and walked out of the room.

Over the years I have taken Avonex, Betaseron, and Novantrone. I have been confined to a wheelchair. I can tell you that there will be good and bad days. I think there could be a lot worse things to have than MS. When I'm having a hard time I just tell myself that there is someone out there worse off than I am.

Even after 9 years I still try to deny that there is anything wrong with me.

If you don't mind I will put you on my prayer list. Take care and try to keep your chin up.

Nancy