Originally Posted by april15
I don't agree with my doctor's diagnosis. After many many tests, he has decided that I don't have MS, but that I have Polymyalgia Rheumatica. I don't agree. I had the guts to tell him I thought he was wrong when he diagnosed me with tennis elbow in January. But I just don't know what to do with this ridiculous diagnosis! He even said he is stumped and that I am too young to have PMR. I am 42 and it's supposedly very rare in people under 60. Plus, i don't have most of the symptoms. The reason he diagnosed me is because my sed rate is 56 and my c-reactive protein is 28. My RF and ANA were negative, so he doesn't believe it's Lupus or RA. I am still not convinced it's not MS. I had a clear brain and spine MRI, so he just ruled MS out. Before he sent me for the MRI, he said if it came back clear, it didn't necessarily rule out MS. Honestly, i am afraid what he really stamped in my chart was HYPOCHONDRIAC!
The last time I was in to see my neuro, she also told me that I had Polymyalgia Rheumatica. My sed rate was slightly elevated, but when I went to a different doctor to ask about this ridiculous diagnosis, he told me flat out that my sed rate was not anywhere near high enough for the neuro to dx me with that. Not to mention, I'm only 33.. and while some of the symptoms I have might fit, a lot do not. I had been in to see her about all sorts of bizarre health problems, but all tests done to that point- MRI's, EMG/NCV, blood work.. all came back negative. The only thing the MRI found (the second time around) were some thyroid nodules. At first she suspected demylenating (sp?) disease, but because I have no lesions, she doubts it is MS. (My mom has MS, and I have a lot of the same health problems). And she also doubted Fibromyalgia, unless it was some rare form of it. LOL I was not given any steroids, though. I was on Neurontin, Topamax, and Elavil for nerve pain (not all at the same time). The last time I saw her, she said she was going to send me for an allergy test (to see if Celiac Disease might be the cause for my problems). Then she was going to refer me to a rheumy. But after that rediculous diagnosis, and the uneventful allergy testing, I knew it was time to stop seeing her.
I don't know if this explains all my health problems - such as sudden numbness in the entire left side of my body- but I found a doctor who properly tested me for Lyme Disease, and my results came back positive. I still wonder if there is anything else involved, but for now, I'm hoping that antibiotics will help resolve most of my issues.