Hi, wondering if anyone has any additional info on this. Went in to talk to my doctor about getting off the pill and possibly having a Tubal ( I have MS and am on Rebif). He said "good idea" you dont want to get pregnant on the Rebif...then, went to my MS specialist, who said even if you have the tubal, you probably dont want to get off the birth control because some studies suggest that the Estrogen in the Birth Control Pill may protect you from relapses! I then went to my GYN, who isnt familiar enough with MS to be able to tell me , but still thinks after all the years on the pill, I really need to get off of it, and a tubal is probably the way to go since children are not a possibiilty in my condition. (I have progressive MS and do not wish to get off the Rebif and "chance it")
My question is do any of you have any further info on this, or any first hand experience at going off the pill after being diagnosed with MS? Did it incur relapses? Do you have any first hand knowledge of whether it is better to risk the health risks of staying on the pill, vs. going off it and facing a relapse? My husband and I have definately decided against children (he has 3 and Im raising them from a prior marriage), and yet the idea of surgery doesnt seem worth it, if I have to stay on the pill anyway...and then again, is the pill hurting me more than it is protecting me?
All opinions welcomed..
The following user gives a hug of support to MSNik: aoife5 (03-31-2011)
I don't have any info just my own story. When i was dx i was on the pill. I was having replases before and after dx. I was steralized in jan 07 and still have episodes like before, so for me, i can honestly say i saw no change from being on the pill or not.
Don't know if that helps but my doc didn't have a problem with me be on the pill or being steralized.
I think that a drop or spike in hormones can effect MS symptoms. I had a tubal 5 years before being diagnosed. At the same time, I went off the pill. At 40, I started with hot flashes, etc. and the MS symptoms started, leading to my diagnosis. For me, I think that perimenapause played a part in the disease. I would trust your Neurologist. A second opinion from a NeuroImmunologist may help. Your body will be stressed a bit with the tubal and if you have it, you may want to continue taking the pill for at least a while.
Don't know if this helps or not, but I just feel very strongly that hormones play a part in this. And, I just think that changing too many variables at a time can send us into trouble. Take care & Good Luck! Barb
Hi- I agree with Barbelle. I have no medical knowledge, just my own experience. I have not been diagnosed with MS but I SUDDENLY and SIGNIFICANTLY started having MS -Like symptoms last fall. In the fall of 2005 I had a tubal and stopped the depo shots. Now I am having menopausal symptoms. I do not know if I have MS, but whatever is causing these neurological problems, I sincerely bnelieve it has something to do with hormones. I went to a naturopath and she indicated that the mylan is made with corisone. I looked into cortisone on the web and found that hormones have a lot to do with cortisone production.
I just looked on the web- I think you cannot post links here but if you search on MS estrogen, you'll find a lot of info.
Last edited by zandvoort; 04-10-2007 at 06:19 AM.
Reason: web research update
What a timely post for me. I'm going through the same decision process. I'm 35 and want to come off of the pill. Husband will be sterile next month. I'm affraid of stopping the pill because I have such unstable hormones. I also like that it regulates my menstral cycle. I have heard that MS really makes menstral cycles irregular. So I don't know what to do either. Is it worth the heart attack/stroke risk to continue the pill? Or should I let my body function on its own? Thanks for bringing this topic to the forefront.
Thank you to all of you who have offered opinions on this subject. I have to say, you all make alot of sense! I do also believe that hormones play a huge part in MS related symtoms and relapses. I also think its probably a good idea to not do everything at once, and take it one step at a time. My MS specialist doesnt see any reason to NOT have the surgery...however, he is adamant about staying on some sort of Estrogen and perfers the pill over supplements....my GYN is looking further into this and will get back to me. Meanwhile, im too stressed out to even think about it (or sex!). You all are great, and your support means so much, thank you.