send some names my way please.... - Multiple Sclerosis Message Board

3love · 04-26-2007, 04:09 PM

Hi, I would like to know if any of you can give me some names of ms specialists in the NY/NJ area (ones that you highly recommend only please)
I live in NJ essex county. And would you please let me know if "this" doctor is the one that diagnosed you?

Thanks!

MSNik · 04-26-2007, 06:01 PM

H 3 love,

Unfortunately I DO NOT THINK we are allowed to post doctors names according to the board rules. This is a shame in this case because I live within 30 minutes of you. I think it is okay to suggest this though, there is a well known MS clinic at Robert Wood Johnson in New Brunswick. You should look into it.

You asked if this person is the person who diagnosed me. Yes, and no. I was lucky to find a Neuro in my neighborhood who really did dx me first, however, I called upon an MS SPecialist to confirm dx and make sure nothing was missed. The MS Specialist confirmed everything my Neuro did, tests, diagnosis, even agreed with course of treatment (Rebif). I felt very glad to have a second opinion and now see the MS specialist every 6 months, and my Neuro alittle more regularly.

If you can get permission to give out names, Ill be happy to give you his...but honestly, I DO NOT want to get in trouble posting on this board. I need this board like a lifeline and post on it almost daily.

Moderator, if you see this, I am trying to find in the rules if it is allowed, if it is, please let us know. IF not, respectfully I hope I havent violated any rules just naming a reputable clinic in the area. Im doing my best to abide by all rules of this board.

Respectfully.
Nikki

3love · 04-26-2007, 07:28 PM

Hey Nikki,

I'm sorry, I did not realize that we might not be allowed to post doc's names here. I'm new to this

But I thank you for your reply

I just wanted a doctor that knows his "stuff", after the appointment I had with a so called "specialist", I told him all the symptoms i'm having and he said get this..."you might have carpel tunnel" umm isn't that only in your hands and wrist? What a waste of time and money! So you see, I just would like to see a specialist that can really figure what is going on with me.

Again, sorry my intention was not to get anybody in "trouble".

Take care,

Bearygood · 04-26-2007, 07:39 PM

It IS okay, according to the "How to share information" link in the FAQ. It says that stating a doctor's name with city and state is okay as long as you don't post contact information.

MSNik · 04-27-2007, 06:39 AM

HI there. Hey, you know what, Bearygood was right. Thank you Bearygood!! IT actually says "Naming a book title and author, or a doctor's name w/city/state is OK, just do not post any off-board contact information; again, on-board sharing only." SO, with that, Im going to tell you to give Dr. Suhayl S. Dhib-Jalbut (known as Dr. Jalbut) a call at RWJ New Brunswick. He is the director and Chairman of Neurology there. Youll find him in the directory.

But I also want to tell you, ruling out Carpal Tunnel isnt crazy. I too, was asked about it at the emergency room and had to have an EMG to rule it out! I was a fulltime student and administrative assistant at the time my fingers went numb. They first ruled out a pinched nerve, then carpal tunnel then eventually my neuro started MRIs, spinal Taps etc to rule out Lyme, infections and viruses. SO dont be too quick to judge the doc you saw as crazy.....MS is all about ruling out what else is COULD be..there is no actual test to test for MS.

Anyway, good luck. Keep us posted. By the way, the Neuro I see is absolteuly as good as the MS specialist as dx and followup. He is in Hunterdon County - name is Dr. Viradia. Much easier to get an appt with if you are in real need.
Hugs
Nikki