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Old 05-16-2007, 08:08 PM   #1
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Question Does Ms Cause You Bad Pain ?



My husband is taking Lexapro and about 5 Viciodin a day for pain and he still hurts. The neuro doctor put him one of the trypline's(antidepressive) med to help the pain meds.

Does anybody else hurt this bad with MS???

He says it is his back about the size of a dinner plate but the pain moves up and down the middle of his back.....and it hurt some around his abdominal flanks. It is dull and constant pain.

He also had pain in his hand whick he said is worse but because it is in a smaller area he can handle it...this pain is sharp shooting pain.

My husband is concerned the doctors are not going to agressive treat his pain much longer and he knows that if the doctors don't he will not be able to work at all. I think the reason he is concerned is he has been on them for quite awhile.

So what about everyone else how is you pain level 1-10 scale with 10 being the worst and 1 being the least?

Froggyfog

 
Old 05-17-2007, 03:48 AM   #2
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Re: Does Ms Cause You Bad Pain ?

I asked my neuro that I had heard MS was NOT a painful disease, he said MS is a very painful disease, especially backpain. I don't think pain pills will help much. Wouldn't he need something for muscle spasms like Zanaflex or Flexeral or something like that? I don't know. I'm just sharing what I "do" know. Tell your husband to please hang in there.

 
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Old 05-17-2007, 04:40 AM   #3
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Re: Does Ms Cause You Bad Pain ?

This is interesting, because my Neuro swears MS is not a painful disease, and yet on occasion, I have pain. I mean, lets face it- for over a year now,I have had nothing but tingling and burning in my hand. On a scale of 1- 10, Id say it is only about a 7, and very managable by tuning it out (what am I going to do?) but on occasion, the spasms start. Last night, something that felt like shin splints was going on....on a scale of 1-10, Id say it was only a 5 or 6, but it was more irritating than anything else until I tried to walk up and down the stairs, and YES it hurt!

This is not to say MS is not painful. I have read stories on this board where people are in chronic pain and very real pain. Nothing is impossible. However, has your husband seen other doctors and gotten more opinions on this? There could be something else going on, which isnt MS related. Many neurological diseases are QUITE painful...he could have more than one?? And, lastly, have you seen a pain management specialist? They are out there..they work on many issues in the form of PT and massage, as well as drugs, something might give him relief. I cant even imagine the pain he is in, and when I read stories like this, I give thanks that my pain is manageable without drugs. ON occasion, Ill pop a Xanax or Ambien to sleep- however, at this point, everything is PRN.

Wishing you luck with this, its got to be awful for him. My symmpathies.
Nikki

 
Old 05-17-2007, 04:52 AM   #4
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Re: Does Ms Cause You Bad Pain ?

I just watched an old Montel show online (can't say which search engine, because I think we aren't allowed), and they had an expert on there as well as guests with MS, and several had pain. Even the professional agreed that when the myelin is stripped down the nerves are exposed and begin to wear away, causing them to cross over or not working properly. Either which you will get lack of function or pain, depending upon the damage to the nerves.

So, YES, pain is part of MS, or at least that's what they said on the show.

 
Old 05-17-2007, 05:11 AM   #5
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Re: Does Ms Cause You Bad Pain ?

I deal with pain daily and my nero said that MS doesn't cause pain. He should try living with it for a while. I found in my case combination therapy works OK. Muscle relaxers and a mild pain killers together work better than either one alone. Marijuana may be illegal but it does work on pain and spasms. If you live in one of the states that allow it see if the nero can give him a script. I'm not advocating breaking the law. Best of luck and I hope you find something that helps.

 
Old 05-17-2007, 01:30 PM   #6
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Re: Does Ms Cause You Bad Pain ?

As you can see, you are going to get 100 different answers on this question. Specialists and patients alike will give you different answers. Bella answered you based on something she saw- the show she watched I actually saw too, and disagreed with 99% of what the person there said. BUT, thats only my experience. Each case of MS is so different. I believe the saying is "like a fingerprint". No two cases of MS are alike ever. The symtoms, progression and even how one reacts to the treatments are sooo very different for each person, that I dont really think there is a RIGHT answer to this. My 'pain" is in my hands, and its tingling burning pain, typical MS pain. However, I know people who have had it so much worse than I, who cant walk, or even chew and swallow, and they have NO PAIN at all. They just cant feel anything! How strange is that? Others will tell you that they have back pain...some have leg pain which is constant...thats real. They arent making it up. The other thing you have to consider, is MS does not have to be a solitary disease. Some have Lupus, others have Fibro and even Lyme can also be found in patients with MS...based on that, who is to say that the pain is MS related?? I have MS only...however, at times, I would swear I have the same symtoms as those who have Fibro, my Neuro says no. ...???? I have to believe he is right.

Its an interesting subject to bring up, and yes, there are zillions of combinations of drugs and even LEGAL Marijuana or the synthetic drug which is so similar. It Works for some, not for others, which takes us full circle to "each case of MS is so different". There is a combination out there which will offer relief for your husband Froggy, keep searching for a doctor or specialist who can find it. I wish you both well.....you have so much on your plate!
keep us posted..
Nikki

 
Old 05-17-2007, 02:54 PM   #7
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Re: Does Ms Cause You Bad Pain ?

One of my closest friends has primary progressive MS and she is in constant pain! I hurt and I have MS so I don't put much stock into Dr.'s that claim ms is not painful.

 
Old 05-17-2007, 03:11 PM   #8
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Re: Does Ms Cause You Bad Pain ?

Thanks to everyone for taking the time to answer.

I like the comparison of two fingerprints not being the same.....I know that is how it is with my FM...and once you said that....I realized most disease especially auto-immune vary from person to person. Next week my husband goes back to the neuro doctor....I'm kinda anxious to see what we do from here.

Thanks again!
Froggyfog

 
Old 05-17-2007, 03:59 PM   #9
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Re: Does Ms Cause You Bad Pain ?

Froggy

The best advice I can possibly give you for your husband is to ask for a referral to a Pain Management MD. They are specialists trained in controlling pain and increasing the quality of life. Pain is so individual, no one can look at you and tell you that you dont have it or how bad it affects you. Unfortunately due to law suits A lot of Drs avoid prescribing long term pain meds because they dont want their patients getting "hooked". My husbands Dr is one of them. He flatly refused to prescribe anything stonger than regular strength Vicodin for him when he has 3 herniated discs in his back and needed a knee replacement. The body does build up a tolerance for pain medications and these specialists have a great talent for dealing with this.
When someone has chronic pain, no matter what the cause, there is no reason to live like that. Uncontrolled pain has to be one of the biggest causes of stress, and we all know this is not good especially with someone that is trying to fight MS.

Usually these specialists require your PCP or referring MD to get them copies of your records and it may take a while to get in to see one. If you dont already know of one in your area Check with the local hospital for the name or names of the Pain Management MD's on staff there and call your husbands doctor to make an appointment for him. Chances are good he will be more than happy to do this, its one less problem he has to address when he goes in for his visits.

Hope this helps, best of luck to both you and your Hubby
Kt

 
Old 05-17-2007, 04:41 PM   #10
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Re: Does Ms Cause You Bad Pain ?

Thought I'd chime in. I've been in pain for several years - since long before i got the dx. Mostly my back and legs. I'd been thinking I was just getting older and that EVERYONE must feel this way, so learning that it may be MS-related was sort of a relief.

I take neurontin, it helps keep both the chronic numbness and the pain manageable most days. My plan is to continue to "tough it out" for as long as possible since I don't want to use up my "lifetime quota" of pain meds too soon!

I don't even know how I would rate the pain. Today it is pretty bad, much worse than usual. But for me it isn't the LEVEL of pain that bothers me, it is the duration. It just wears me down to be in constant pain.

 
Old 05-17-2007, 05:56 PM   #11
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Re: Does Ms Cause You Bad Pain ?

Lilc,your not OLD!!!!!!!!!!!!!

I have chronic pain not only from MS but from 2 failed back surgeries.

I suffer from severe leg pain and take an arsonal of meds to keep it at bay.

I went to pain management and all they wanted to do was injections,for many that works.But through proper pain management it can be very effective.

 
Old 05-17-2007, 07:16 PM   #12
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Red face Re: Does Ms Cause You Bad Pain ? CORRECTION

Just to show you how bad my FM is I messed up and told you the wrong meds.......I was reading the post and responses to my husband and he was like..."that's not what I am taking".....after a big laugh(its either laugh or cry) I thought I better correct it:

Meds husband is taking
CORRECTION

Lyrica 150 mg two times a day

Percocet 10/325mg five a day

Noritypline(sp) at bedtime

Sorry guys as you can tell brain fog gets to me most days.

Froggyfog

 
Old 05-18-2007, 02:38 AM   #13
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Re: Does Ms Cause You Bad Pain ?

Toni, I know, I'm just moving in the DIRECTION of old!

Froggy, lol about getting the meds wrong! That fog seems like a good reason to invest in a PDA - but I just can't figure out how to USE the stupid things!!!

I believe percocet is a pretty heavy-duty pain med and it can be/is addictive. (I took percodan for 2 weeks when I had my wisdom teeth out, had to take tylenol 4 to get through the percodan withdrawl. I THINK percocet is the same drug?)

The suggestion(s) to see a pain management doctor seems like a good one. Praying you and he can find effective relief!

 
Old 05-18-2007, 10:30 AM   #14
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Re: Does Ms Cause You Bad Pain ?

Quote:
Originally Posted by lilc View Post
Toni, I know, I'm just moving in the DIRECTION of old!

Froggy, lol about getting the meds wrong! That fog seems like a good reason to invest in a PDA - but I just can't figure out how to USE the stupid things!!!

I believe percocet is a pretty heavy-duty pain med and it can be/is addictive. (I took percodan for 2 weeks when I had my wisdom teeth out, had to take tylenol 4 to get through the percodan withdrawl. I THINK percocet is the same drug?)

The suggestion(s) to see a pain management doctor seems like a good one. Praying you and he can find effective relief!

I had a PDA(gave it to my husband) I would put my appointments in on the wrong dates LOL I'm pathetic!

Yes Percocet is a strong narcotic that is what has me worried. I guess if we don't get any answers after his neuro appt then that will be our next step before seeing a rheum doctor.

Thanks for your help

 
Old 05-18-2007, 11:11 AM   #15
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Re: Does Ms Cause You Bad Pain ?

Quote:
Originally Posted by lilc View Post
Thought I'd chime in. I've been in pain for several years - since long before i got the dx. Mostly my back and legs. I'd been thinking I was just getting older and that EVERYONE must feel this way, so learning that it may be MS-related was sort of a relief.

I take neurontin, it helps keep both the chronic numbness and the pain manageable most days. My plan is to continue to "tough it out" for as long as possible since I don't want to use up my "lifetime quota" of pain meds too soon!

I don't even know how I would rate the pain. Today it is pretty bad, much worse than usual. But for me it isn't the LEVEL of pain that bothers me, it is the duration. It just wears me down to be in constant pain.
I understand what you are saying Lil,
The pain level isn't what is so bad, but the duration is awful. Until I found this board I thought everyone felt like this too.

 
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