Saw my primary care doctor today and she actually sat down and really listened to me today and then the visit went kind of downhill after that because of her reactions to what she said was a decline in me from the last visit.
I'm having a "nerve conductivity study done" on Tues. She did order that.
I have to admit that I'm a little freaked out this afternoon. My doctor came in, we chatted, she started asking questions, saw I was having trouble with my hands, starting running some simple tests with hand eye coordination and other tests and I didn't do so hot and my reflexes didn't register when she hit all the right spots. She became a little more, um, desperate, as the visit wore on and ended up having both the RN and the med tech in the room helping her. In fact, she was pretty flustered at the end which kind of freaked me out. She said, she doesn't know if its MS, but that its definetly neurological just based on the simple tests she performed. I am getting a referral to a neurologist and she called him while I was there and asked him to please do a brain MRI to check for lesions, so now I am awaiting their call for that appointment.
If I wasn't scared before, I am a tad bit more concerned now. I mean, she did lose her professional detachment by the end of the exam and I could tell she was wanting everything done yesterday. This is probably the first time I've seen her lose her cool over something. But she did listen finally and did agree "something" is wrong and doesn't believe it has anything to do with fibromyalgia.
So I can home, ate some cheese crackers and took a nerve pill so I would quit shaking and am just hoping for the best. No sense in both of us freaking out until I get real answers from real tests. She seemed to be a bit more freaked out at the end of the visit than I did and really had her entire office in an uproar trying to get me in to have blood work, the nerve test and an immediate visit with a neurologist.
But I at least feel that now SOMETHING is going to be done so if losing her cool, made it happen, than so be it. I needed someone to get on the stick and do something as I can't continue on like this. I feel like poop on toast and I need answers and hopefully some treatment options.
Thanks for the advice guys.
Now, is the nerve conductivity test painful? What exactly is it?
I agree with Nuffs on this one. Your doctor is doing a heck of a job trying to get you dx and get the necessary tests done! Be happy! Have you seen some of the horror stories people post about trying to get diagnosed?
Now, you need to relax and realize something. NO one is rushing you thru this because its life or death. NO One dies from MS, nor is it life threatening. Many Neurological diseases take YEARS to start to show, even though you might have had them for ten+ years.....your doctor saw the issues you were having, realized there was a problem and probably wants you dx so that you can started on meds asap. She cant prescribe anything to help you unless she knows what she is dealing with. Do you know how rare it is that a GP calls a Neuro, makes an appt and gets you seen and orders tests ??? YOu should be dancing in the streets. bet you get alot of comments of people who are jealous....
Relax. Even if it is MS...keep reading. We are a pretty normal bunch who are quite capable of guiding you thru this....not knowing is SO much scarier than dealing with the disease! We will be here, promise.
When is that appointment?
Thank you. After a good nights sleep, I am feeling a bit better about everything and less freaked out. I was also dealing with low blood sugar as I had been in her office for a total of 4 hours and hadn't eaten prior to going, which I know is dumb, dumb, dumb and will not do that again.
And I know about trying to get a diagnosis. When I first started having problems 4 years ago, I spent a YEAR trying to get any doctor to listen to me. I was bounced around to all kinds of specialists and told all kinds of things and they finally just said: It's fibromyalgia and we can't do anything for you. At that time, I did not have a brain MRI which I felt I should have had, but the neuro was such an A** that I ended up writing a horriblely nasty letter to him and his chief of staff.
So yes, I should be thankful she is getting the ball rolling and I see that now. Thanks guys. It is very frustrating to know you have "something" wrong and see several doctors who will not listen or do tests and then just throw out a Dx without anything really to substantiate it, but to "satifsy" the patient.
I had conveniently forgotten what I went through a few years ago and the frustration I felt.
So I guess I complain because the doctors do nothing and then complain because they get on the ball and do something. Am I never happy? :lol
I still don't have the neuro appt. His office was supposed to call me, but my dr. gave me his card and said if I hadn't heard from them by noon today to call them myself.
I agree with everyone else, feel blessed, not stressed!! I kinda went through the same thing as you in 2002. I was shuffled from one doc to the other, only for them to tell me my symptoms were related to fibro and high stress situations. But, I've always known something else was going on. I'm just now pursueing other medical avenues, and yet my primary thinks it's "no big deal". So, just realize no matter what, a diagnosis doesn't change a thing. It's just a label and whatever you have you will get treated, and helped.
The nerve conductivity test is not painful. At the most, you might feel slight tingling pulses where the sensors are placed. It's typically less than the feeling from static electricty. The only ones I usually feel are on my forehead and top of my head.
Having MS is not the end of the world. It definitely can change things in your life, but it's not going to kill you. It will, however, annoy the heck out of you at times. Some of my biggest frustrations are when I drop the toothbrush or curling iron. I never could juggle.
Keep us posted! As you'll find, there are a lot of us out here who will always listen and provide whatever support we can.