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Old 06-04-2007, 09:38 AM   #1
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The technical term to feeling bad in the heat....

Uhthoff syndrome --> Uhthoff symptom

A transient temperature-dependent numbness, weakness, or loss of vision. conduction stops in any nerve if the temperature gets too high. In a damaged nerve, e.g., by demyelinization, this shutdown temperature is lowered, and may approach normal body temperature. Transient neurological dysfunction may then appear with a hot shower, exercise, or fever.

klc

 
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Old 06-04-2007, 10:51 AM   #2
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Re: The technical term to feeling bad in the heat....

Klc, How do I ask you this, without coming across the wrong way? Ill just ask you, but I really hope I dont offend you. Are you researching everything for a reason?

This is why Im asking you this. Im not even sure if you have MS, or waiting for a dx- I honestly cant remember anything about you- but I do worry about you. The amount of research you are doing, is almost unhealthy. Any doctor is going to tell you to stop now! Its one thing, if you have a disease, to learn everything there is to know about it; but quite another thing to be self diagnosing or trying to play "physician". I pray that you are NOT doing that to yourself. Youll make yourself sick trying to figure out what your symtoms mean.
I really didnt want to post this and risk coming across like a know it all...im certainly not- however, after reading 3 posts today from you, I really am concerned that you are trying to find out what is wrong with you via the internet....its just not healthy. Do you think you have a good Neurologist? Do you feel that everything is being done to help you find out what is going on with your body? If you dont- please ask for referrals for a better doctor. If you do, please let the doctor do whatever needs to be done to help you through this. You are actually quoting so many things off the internet, that I fear you are going to overload yourself on "what ifs". I really hope Im wrong and that you have this under control.

I will say a prayer that you are able to find relief from the symtoms which ail you soon! And, Ill also add a prayer that you dont bite my head off thinking IM insane! Im not, and this truly comes from the place which cares about anyone who is suffereing...>I just dont want you to go nuts trying to find out why. Leave that for the guys who make us wait months for appointments, and charge us astronomical amounts to give us opinions!
n

 
Old 06-04-2007, 11:57 AM   #3
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Re: The technical term to feeling bad in the heat....

Nikki,

I would like to say something in response to what you said, and hope you realize you're still my favorite , but I think I know where she's coming from. I have to wait 4 long weeks till my Neuro appointment, and I'll be honest, I have been researching stuff on the internet too..lol It's not that I'm obsessed with knowing, or self diagnosing, but it does help pass the time until the doc sees you. It's unfortunate that our society doesn't offer immediate medical care when you're feeling this crappy, but instead we get to sit here and worry.

I don't really care what the terms of different things are, but I do like to look up a symptom here or there and find out where it stems from. It is unhealthy to spend every waking minute thinking you have this or that, but I just had to comment that I think ALOT of us here do surf the web for info.

hugs,

Lisa

 
Old 06-04-2007, 01:02 PM   #4
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Re: The technical term to feeling bad in the heat....

Lisa, youre still one of my favorites too and NO Im not offended. I dont think that IM putting into words what I really mean to say. Desperate responded to another one of my posts and she said it SO well. Its not that its bad to reserach things- but it CAN be really UNhealthy to think you have nailed a disease or think that you have matched up symtoms to a disease and then walk into a doctors office.....there are horror stories about people being "dismissed" becasuse they come across thinking they know what is going on and actually argue with the doctor. How many people have had dx which after 3 or 4 doctors are all coming back saying "in the patients head". This stems from doctors not being able to dx a patient because the patient has already figured out what it is they want to hear. Nothing else.

As far as reading on the web, I still think that asking real people (as in here, this board) is the best way to find out if others have experienced aches, pains, side effects, drugs issues, etc. You cant read about side effects of a drug and understand it as well as you can ask someone who has been there to describe it to you. Also, Having been thru this for as long as I have and having seen as many specialists as I have seen, EVERY SINGLE ONE OF THEM has conclusively told me NOT to research symptoms on the web. Learning about a diagnosed disease is quite different from learning about symptoms. If each of us listed every single symptom we had ever had, which IS MS related, we would all have different diseases, according to the internet. Research a diagnosed disease, but not a symtom...see a doctor for a symtom. Find out why it is happens...but asking "Jeeves" just doesnt sound all that realisitic.

Ill have to find that post which Desperate responded to.She said it soo well. If you research enough symtoms, you WILL convince yourself of what is wrong with you. You can even make your symtoms worse...trust me. Desperate was right on this. And, Truly, researching from websites is only as good as the site you are researching on. How would you know if the info was updated, or if it was found to be false 2 months later? You dont really think they take it down..or update it? There are a few good sites, really and honestly. A few which will tell you all about drugs, drug interaractions as well as diseases. The site which hosts thisn health boards, is an excellent source of information...but again, you have to know what it is you are looking up. If you randomly look up symptoms, especially in a disease as broad as MS, youre not likely to get all the info in the correct sequence.

Does that make sense?
n

 
Old 06-04-2007, 01:32 PM   #5
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Re: The technical term to feeling bad in the heat....

At my first neuro appointment, when he told me he thought I had MS, it was a surprise to me. Although I had an attack last year, it was misdiagnosed as a virus and all the lasting symtoms were put down to the same thing and I was happy with that and didn't question it. So I suppose it is important to be informed so you can push to see the doctors and get the help you need.

However, I also think it's dangerous to read too much into it. The mind is a very powerful thing. For over a year I had had two constant symptoms. But nothing else. After seeeing the neuro, I went online and read lists of symptoms and within two days suddenly developed a very wide range of mild and brief symptoms. I don't believe they were real. They were my reaction to a shock. When I got busy and distracted at work, guess what, they dissappeared.

Klc, I hope you get a dx (whatever it may be) and some peace soon.

Cat

 
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