If MS symptoms are aggravated by heat how the heck do you survive both hotflashes (and I mean all the time) and 100 plus temps all the time? Do you think thats why I;m still stiff and tired and still can't get rid of the numbness in my right foot. Someone (maybe it will be me) should ask the doc how the heck we are supposed to live with innner heet and outdoor heat lol this can kill you
Good Grief, I could have written this one, myself! If you get an answer, let me know!! I have asked my doc several times how to survive this, and his answer has consistently been stay cool. Stay in the A/c, stay in a pool, whatever it takes....
You think my boss will put a pool outside my office for those days when I feel the need? Lol..
Its horrible, isnt it? You are NOT alone!
Nikki
Im melting right along with you. It's like a hotflash on the sun most of the time. Had to laugh at someone recommending light cotton night gowns. The only plus is they dry a lot faster than the other kind after you wring them out.
I think a nice move to say maybe Alaska would be an idea?
I did see a cooling vest on the internet that looked like it might work, it had gel inserts that you charge in the freezer. makes you look like a crossing guard though. This wrung out dishcloth feeling has got to come to an end soon.
Stay as cool as possible, but never let them see you sweat right?
well put KT!! Actually there is a whole line of clothing made for MS patients which is similar to what you are describing. I get catalogs all the time trying to sell me this stuff. Unfortunatley, you are right, they arent especially flattering! I am thinking of trying some of this though for this summer outtings...anything that keeps us cool has to keep us happy, right?? IM not exactly looking forward to some of the places I need to go this summer...at least staying cool might help.
Hugs to you.
N
I'm actually so blessed today. It's unseasonably cool , and I have the windows open with a ceiling fan and it's beautiful!! But, on hot days I need the a/c or I can't even function. I used to think this was something everyone felt when they were hot. But, then when I married my husband and he would constantly tell me I was crazy, and it wasn't warm in a room I knew it was just me..lol We battle over the thermostat ALL the time. I tell him if he wants dinner on the table, and the house cleaned I need the a/c!! I get nauseous, dizzy, feel like I weigh 500lbs, but he still doesn't get it. My 10 yr old gets the same way in the heat, this is why he doesn't participate in organized sports.
My best advice to you is to buy those lil mini fans with the batteries, and also I saw this one device that was a ring you put around your neck to cool you off. I'll have to look it up to find you the name of the product. Remember your wrists, neck, and feet are spots to keep cool.
If you get an answer, let me know!! I have asked my doc several times how to survive this, and his answer has consistently been stay cool. Stay in the A/c, stay in a pool, whatever it takes....
as possible, but never let them see you sweat right?
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