Second Mri Results - Multiple Sclerosis Message Board

froggyfog · 06-05-2007, 09:46 PM

Well I should be happy my husband had his second MRI of the brain( first one done without contrast, this one done with) and both were negative for any lesions etc. Everything was normal.

His spinal tap was also normal. So I guess we are still looking for what is going on....I really thought he had MS....he has heat intolerance, double vision, electical sensations, numbness in his thigh, and back pain and occasional pain in hands/feet. Plus hes been fatigue. His VEP was 4.8 with 5.0 being abnormal.

OK I know I am rambling but it is very nerve racking not knowing what he has. Any thoughts would be greatly appreciated.

Thanks for listening.

Froggyfog

Bearygood · 06-05-2007, 09:47 PM

froggy, what does the neuro say?

froggyfog · 06-05-2007, 10:07 PM

We didn't have the Neuro appt yet.....what I did was had the hospital fax us a medical release form and my husband signed it ,then the hospital was able to fax us the report.
I wanted the Neuro to do a MRI of his cervical(upper spine) when he was doing the brain one but the doc said he just wanted to check the brain and if we needed too we could check the spine later....Have you ever heard of someone having lesions in their spine but not their brain??? Could a person have symptoms and no lesions be present and spinal fluid be clear????

My husband got sick to his stomach today and threw up, he was driving his truck at the time and had to pull over. He said he had been nasusated(sp)on and off for a few weeks. That could be his meds or something.....I made him an appt with his primary for tomorrow because this is not normal and we need to find out what wrong.

Froggyfog

Bearygood · 06-05-2007, 10:33 PM

Quote:

Originally Posted by froggyfog

Have you ever heard of someone having lesions in their spine but not their brain??? Could a person have symptoms and no lesions be present and spinal fluid be clear????

I'm not sure if lesions can be present only on spine if they're not on the brain -- but I'd guess yes. I don't really see why that couldn't be the case and I also just learned it's possible possible for lesions to be present on the thorasic spine as well. If you find out the answer to that question, if lesions can independently be on the c or t-spines, please post!

As for the second part, there are many people even on this board whose tests are coming up clean but their symptoms are real!

I thik it's great you're calling your PCP. I've said this many times -- not that I ever underestimated the importance of having a good general doctor but this situation proved it to me many times over! I bailed the first time I tried to do an MRI (I'm a veteran now, LOL) and had to call my internist for a valium prescription. Turns out the best thing I ever did was to have that panic attack! It was the reason he found out what was going on and things TOTALLY changed for me when I involved him. He's now my "team leader" for sure! He changed the course of my whole dx process. I hope that you and your husband get as luck as I do, froggy. Please keep us posted.

KTMorra · 06-06-2007, 07:18 AM

Quote:

Originally Posted by froggyfog

Have you ever heard of someone having lesions in their spine but not their brain??? Could a person have symptoms and no lesions be present and spinal fluid be clear????

Froggyfog

Hi Froggy

I am that someone. My head MRI is clear, I have several lesions on my C-spine and T-spine and have had 3 spinal taps all 3 came back basically clear. Increase in white cells I think with the last one. I also have recurrent optic neuritis. My Neuro sent me to another specialist who deals with patients that have another disorder called Devic's disease. It mimics MS in symptoms in many ways but the major difference is the placement and size of the lesions. The brain is usually clear. The specialist did the usual neurological exam, looked at my MRI's and blood work and concluded that the lesions weren't the right shape for Devic's but I definitely had MS. Just atypical presentation of MS lesions is what he said.

You may want to mention this to your husband's Neuro, it is a rare disease and there arent a lot of studies out there on it.

Hope this helps
Best of luck to both of you
Kt