DX: MS - to start Copaxone - Multiple Sclerosis Message Board

Pearlscale · 07-17-2007, 07:04 AM

After 14++ yrs of being told lyme disease and fibromyalgia, I was dx MS June 28. Developed trigimenal neuralgia June 17, I think that helped finalize the dx. Saw the other FM thread, I agree that FM is a catch all and my dr didn't even consider looking further and I wasn't medical savy enough to know any better.

I am to start copaxone this week as soon as they send a nurse out. Anyone with advice, appreciated...

Thanks
Marsha

WALLEYE · 07-17-2007, 11:05 AM

Talk to shared solutions thet will send you a ton of freebies info, with pescribtion from docter you can get a auto injector and a locked storage box. these nurses ARE VERY VERY HELPFUL.

mnewhall · 07-17-2007, 11:35 AM

Hi Marsha,

I'm sorry that you have to endure suffering as so many others here, BUT, I'm glad you have a solid dx and can begin treatment. I too am in the over 15 + years with sx's and dx's of fibromyalgia and a whole mess of other autoimmunities. Can't give you any advice on Copaxone, as I am in limboland, but sure that others can -- I'll leave that for the experts!

Your story is just another one to give me hope that maybe one day I will get the treatment I need as well.

I really am praying for physical grace for you and for you to be on the road to some healing.

How is your TN now? Hope you are feeling better.

Blessings,
Michelle

Pearlscale · 07-17-2007, 09:14 PM

Walleye
Waiting for the nurse to come out. Have contacted MS National and expect packett of info from there also. I want to learn all I can.

Michelle
My TN is better. Side of my face isn't back to normal but the pain is pretty much gone. Thanks for asking.

Hope they get to the bottom of your problems soon. I don't doubt I have FM, but I think there is a cause. And in my case it is MS. My Rhumy just didn't look hard to find the cause. But then back then, there wasn't alot known about MS or FM.

Prayers.....Marsha

KTMorra · 07-18-2007, 05:42 AM

Hi Marsha

I'm glad the road to a diagnosis is finally over for you. I'm sure you have lots of mixed emotions right now, I know I did this past February after a 10 yr roller coaster ride. I was just switched to Copaxone from Rebif last week and so far its wonderful. The shots, I use the auto injector, are very easy to give yourself. The only thing I have found in the way of side effects are a bee sting like feeling for about 10 minutes after the shot, and when I gave myself the shot in my thigh I got a welt that lasted a couple of days. Ice helps a lot with the stinging feeling and helped bring the swelling down in the welted area. The whole shot process lasts less than a minute from wiping down the area to giving the shot. Not a big deal at all. Not to say it is pleasant to have to poke yourself every day but the process is not horrible compared to not doing it and having to deal with the inevitable relapses that occur with MS.

Best of luck to you, If you have any other questions please don't hesitate to ask.

Take care
KT