Update Nuero visit and questions - Multiple Sclerosis Message Board

WALLEYE · 08-27-2007, 02:46 PM

wife was taken of copaxone because of vision and dizzy spells and docter does not feel that the copaxone is working for her, she was put on rebif anyone have experience with this drug. shes still out of work until decisability runs out late aug or sept.
no news on hotflashes and (dryness)
shell go into gyno cologist to figure this one out since this guy does not have any answers for us on the hot falshes. as far as the vertgo therapy i guess this will take time.wife very upset about work which i can fully understand. shes wooried about the god almighty *******$$. i guess her health insurance will go bye bye to.
im just dont get it all these young kids having kids and getting help from the state cause they cant afford it and the wife cant get %^&$. this stinks shes been working since she was 16 she now is turning 39, but the state does seem to have any kind of help for someone who really needs it. theyed rather give it to kids to dumb to use condums and lazy people who refuse to work.
next ms appointment is three months.
does anyone know if its the meds taht affect the eyes( i mean a difference in lighting )
Scott
ps we got a computer at home one of my younger brothers bought it for us. wife cant seem to use it it bothers her eyes.

MSNik · 08-27-2007, 03:00 PM

Hi Walleye
Im on REbif. Its one of the three interferon drugs which are given by injection. Much like Copaxone in theory, its NOT the same drug. Rebif is given 3 times a week, subcutaneously, which means UNDER the SKIN NOT in the MUSCLE. I happen to really like Rebif and have been on it a year...but be warned. The first 3 months on Rebif are bad...the side reactions are flu like sytmpoms and feeling overall lousy...it DOES go away and most everyone gets used to the drug, but the first few months are tough...give your wife Aleve 1/2 hour before each shot...it keeps working for up to 12 hours and can be bought in any grocrery or drug store.

On the computer front- can you turn down the brightness? I sometimes get really freaked out by bright lights too. Movies kill me anymore...however most computers, if you go into the control panel, have a place where you can brighten or dim the lights, and also make the fonts (the reading) bigger! hopefully this will help.

Hope she starts feeling better soon.
Nikki

duttin · 08-27-2007, 03:19 PM

Walleye,

I can understand you frustration.

It took me 2 years to get my disability.

You are correct,the system just doesn't seem to be fair,we work and when we need the help we have have to fight tooth and nail.

I'm also on rebif,have not had a new MRI since starting rebif.It took awhile to adjust,I have had 2 relapse since starting it,this is a nasty disease and it likes to linker in some people.I'm hoping that the rebif has helped slow the progression and my other meds help with the symptoms.

moore170 · 08-28-2007, 11:20 AM

It took me one month to qualify for SSDI but I know that is not the norm. There is a six month waiting period from when you are determined eligible. I don't know why we should have to wait but that is how they do it. Most states (maybe all) offer SSI (short term disability income) for the interim. It is a lot less but at least it is something.
Candy

WALLEYE · 08-29-2007, 05:46 AM

thanks to all this is some really rough crap.
docter says she not even close to being disabled. they want to get the eyes and dizziness under control. not sure when the nurse will come from rebif, confused about still taking copaxone if its not wiorking.
wife talked to therapist and told her after eye excersises that the dizzy spells get rotten and the therapist feels that the dizzy/vertigi is related to ms.
i guess when her disability from work stops its time to open doors. im working on this now.
you guys and gals are the best support.
thank you