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Old 08-28-2007, 10:23 AM   #1
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twink65 HB User
Question And all of a sudden Im walking well... what are people thinking?

Hi everyone

I was wondering if you ever have these kinds of feelings and emotions. I am just coming out of a very bad 4 month relapse. Last week I was using my cane I never went to the store. When I went to church I looked terrible having to hold onto people etc. And now? It's like overnight ! I woke up this morning and I felt stronger... better...then I have in weeks. It's like so sudden I am embaressed. I live in a small town everyone knows me unfortunatley and they are always smothering me with their pity for me. Now? Im almost embaressed because I can walk better. Do you ever worry too much about what people think? I worry people think I am faking my illness and Im nutzz ! I sure would appreciate your comments and how to deal with it. The weather changed and sure enough ( REMISSION ) same pattern as the last five years of my life !!! crazy stuff this MS is.... Please share your thoughts

Twink...

 
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Old 08-28-2007, 12:45 PM   #2
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moore170 HB User
Re: And all of a sudden Im walking well... what are people thinking?

That is the way of life with MS. Thankfully you have gotten a remission. Hopefully for good. If people think you are faking they just don't understand MS. As long as your friends/family understand, I wouldn't worry about the others. The National MS Society has some very good pamphlets that explain the unpredictability of MS well. If you go on their website you can order them.
Candy

 
Old 08-28-2007, 01:02 PM   #3
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: And all of a sudden Im walking well... what are people thinking?

I agree with Candy that this is the way it is with MS, very unpredictable and you can never tell what is next or when it will hit. In this case, I would consider it a blessing and roll with it!
You need to not worry about what others think. Small town, or Small minds, even if you lived in New York City, there would still be people who would judge you because you walked with a cane or needed a wheelchair or had a seeing eye dog. People are people and its not your responsiblity to worry about what they think of you! ON the other hand, Candy is also right. There are alot of good phamphlets available which you might want to give to your close friends and family helping to explain what it is you are dealing with! As for the church people, if this means alot to you, ask to speak out loud one day- tell people about MS and EDUCATE them on the disease. Youll be doing all of us a favor by doing so....and at the same time, an element of privacy comes into play here. I choose to be a very private person who doesnt like to tell people about my MS, so when I do relapse, and do walk funny, I choose to hibernate, and only tell those who are closest to me. Only my boss knows at work, and I can be honest with him and tell him when I need to take off, and why! You have to decide what is important to YOU. You also need to realize that people DO NOT UNDERSTAND the disease, and probably do wonder, and if you can live with "let them wonder' then fine...but if you cant, then your only option is to educate them. MS IS nothing to be ashamed of....but you dont want people feeling sorry for you thinking things are worse then they are, or terminal, or just plain wondering...

Thank Goodness you are feeling better. Thats great news.
Nikki
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"Every New Beginning Comes From Some Other Beginning's End"

 
Old 08-28-2007, 06:36 PM   #4
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tuckersmom HB User
Re: And all of a sudden Im walking well... what are people thinking?

Twink... they are right about people. I still have family whom I have spent way more time than I care to realize explaining things a hundred times and they still don't get it. I wonder if it's because they don't want to because then they would have to stop judging me. I even had some lady stop me in a grocery store ask if I had been drinking and should I be driving. I was having a particularly bad day and it had taken all I had just to get to the store. I tried to nicely tell her I have MS and some days that's how it is... she looked and me and said "that's a fine excuse" and walked away. I wanted to run over her with the cart! It's hard to not care what others think and it takes practice but it sure does lighten the load.

The only person it should matter to is the one lookin' back at ya' in the mirror. Keep your head up and educate those who will listen and those that won't... you can't do a thing about them.

Lisa

 
Old 08-29-2007, 02:27 AM   #5
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parisiancat HB User
Re: And all of a sudden Im walking well... what are people thinking?

This is a crazy disease. If I wasn't living through it, I don't think I'd believe half of it!

I sometimes worry about what people think, when I'm limping down the street. Or when I start to walk alongside a colleague and 'suddenly' develop a limp. But I have to put it out of my head and I try not to think about how I might look. If I did, I would never go anywhere.

It's easier said than done but enjoy being able to walk again! Go and do the things you've missed over the last few months. When you go to church or shopping, maybe you could bring your cane, but lean on it less, so that people realise you've improved but aren't shocked by the overnight improvement ... gradually phase it out? Just a suggestion.

At the end of the day, it's your health that's important, not what strangers think. It's great news that you're in remission.

Cat

 
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