Hi, after scanning this board for some time I finally registered. I was diagnosed with MS a little over a year ago after complaining of slight tingling in my hands and feet and what prompted me to go to the doctors was a tingling down my spine when I bent my head. After an MRI of my spine (a lesion on my upper spine) and an MRI of my brain (approx. 6 lesions) and a spinal tap, my doctor diagnosed MS. I was a little skeptical about dx so I had a second opinion at U. of Penn. with an MS specialist who agreed with origninal doctor. Since my symtoms weren't severe I was still skeptical ( I guess it may have been denial!). Anyway, I started on Rebif and have been faithrfully injecting. Five days ago however, I woke up with severe tingling and numbness in my feet and it went to my legs (below my knees) the following day. It now is affecting my pelvic area and I'm afraid I may wet myself or worse. I don't feel like I have any muscle control. Sorry this is so long but I wanted to give some background info about myself and would like to know if anyone else has experienced this numbness in that area. I'm going to call the doctor on Tuesday but am anxious about this. Thank you all!
The following user gives a hug of support to terrib854: sgwynk (12-31-2011)
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I know its the long holiday weekend but I wouldn't hesitate to give your Neuro a call, their answering service can get to him or who ever is on call for him for you. The sudden loss of sensation and feeling like you may not be able to control your bladder etc.. could be a red flag that something is going on that needs to be addressed ASAP.
I have had a very similar incidence that I ignored until I was having so much trouble walking I fell. and also became incontinent for about 48 hrs. My feeling in my groin area never has fully returned. I was started on IV solumedrol as soon as my Neuro heard about what was going on. And of course I got the standard lecture that it is stuff like this that needs to be brought to his attention right away, and not to worry about what time of the day it is or what day of the week it is. This is what they are there for basically is what he was saying. Personally I think I was in denial and hoping against hope that it would magically go away by it self.
Please go ahead and give your Neuro a call just to be on the safe side. Rebif is supposed to slow down the progression of MS, unfortunately there can be relapses even when you're taking it.
When I get the tingling or numbing, it usually begins in the extremities or head. My hands or feet react very well to cool water immersion or cold packs. You might try this. Your medications will not stop the symptoms and weather changes can cause reactions.
Thanks for your fast replies! I took your advice and called my neuro. and tried the cold packs! Unbelieveably he has no one on call on the weekend. The answering machine just said if it's an emergency, call 911. That's the last thing I'd want to do so I'm bearing with this until tomorrow. Hopefully I'll get some kind of relief. I'm so glad I discovered this website, I've experinced some of the same symptons that have been discussed on this site but most of the time I thought it was my imagination and then they would go away----never thinking it was MS. Thanks again for your help.
Just wanted to say, after my relapse this year. My pelvic muscles were so weak. My Neuro recommended me to do P.T. They have me on a program to strengthen my pelvic mescles.. With that being so weak, it affected my walking to a limp.. feeling better already, its been 3months, of hard work, but worth it. Ready to loose the walking stick again. Good luck to you.
Hi, went to Neuro today and he put me on prednisone, eight pills today, seven tomorrow and so on. He mentioned an IV instead of pills but I'd rather go the pill route. I hope it gives me some relief soon. I may be getting a urinary tract infection too. I guess that's because of the numbness and not always being able to empty my bladder, oh joy! Just looking forward to walking without a shuffle! Hopefully I'll have good news soon. Bye for now.