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Originally Posted by mitch512u  "The problem with taking meds too soon is that any meds could mask MS symptoms and delay a diagnosis."
I seem to recall in an earlier post that you had MS symptoms over 25 yrs. ago. True? Were you dx'd at that time or not until you received the dx of PPMS? Then in other posts that I read I came to the conclusion that you did not treat for MS with any of the meds available but chose instead to do the 'natural' regime. Now I read more of your situation: needing the wheelchair , your helper dog, etc. I find that I am troubled by your advice to hold off on the medication. I respectfully disagree...I don't see how that benefited you. , Mitch |
Mitch, no offense taken. I had two bad years 1982-1984. My doctor's advice was that the steroids and the medications had a limited use period before the toxic build-up would require getting off the meds. I had my two bad years and then 18 years remission with a pretty normal life. In 2002 I came out of remission with a full-blown PPMS. PPMS is not treatable with any meds. My original MS hardly bothered me in comparison.
My PPMS required the assistance of a service dog and a powerchair. I feel that I made the right decision because I did not have to endure any side effects or any long term negatives from any meds. It benefited me from 1982-2002. From 2002-present nothing could have stopped the MS. Every MS patient will have to endure (most likely) a more progressive form of the disease later in their lives.
I have no regrets. God has richly blessed me.
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