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Old 09-28-2007, 10:21 AM   #1
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janito HB User
Nclynn

Hey lynn wondering how you got on today with the neuro? Is he still in one peice lol,
Hope you've all calmed down after your terrible experiences, that must have be sooo scarry, bless you all there and really do hope you are all feeling better today.
Janito.xx.

Last edited by janito; 09-28-2007 at 10:24 AM. Reason: little

 
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Old 10-01-2007, 05:46 AM   #2
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Re: Nclynn

Hi Janito,

I made out okay at the neuro on Friday. Yes, he is still in one piece! He said the 2 lesions on my brain have not changed, but that I do have some scattered spots also. He said something about being a little bigger than subtle like the radiologist had said, but I have to ask him whether he was talking about the 2 lesions or the scattered spots. I will be talking to him today about the results of my sleep study, so I will let you know what he says. He had come down some from the 95% sure about MS after I went to Duke, but after looking at my recent MRI he is at 80%. He said he doesn't know of anything else it could be since all my symptoms are consistent with MS.

The one thing that confused me is that he said I haven't had an "attack," because I haven't had certain things with my eyes, walking like I'm drunk, etc. I don't know what you would call what I have been experiencing for the past 7 months then. I wonder if an attack and a flare-up are different things.

He is glad I'm going to the neuro-ophthalmologist on the 8th and Hopkins on the 19th. He said maybe the neuro-ophthalmologist will see something in my eyes that will point toward MS. He also said he wants me to have the doctor at Hopkins take a close look at the MRI of my C-spine, since the radiologist had a question about one area. My neuro really couldn't see what the radiologist was talking about, so he wants the doctor at Hopkins to check. I know I have herniated disks in my C-spine, but I would think they would look differently that the way MS would look.

My son is doing much better after last week...thank you! We all are, just a bit more cautious in general.

I hope you have a wonderful and blessed day!

Hugs,

Lynn

 
Old 10-02-2007, 07:48 AM   #3
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Re: Nclynn

Walking like your drunk? well you can remedie that next time you go see him lol... Whats he on about ? and i do beleive that some people with ms have never had any problems with there eyes. Jeezz you think your getting a little nearer and then another issue becomes apparent. Glad your all feeling better, and caution is always a good thing.
I think leisions and all the relevent symptoms would be enough but hey im no neuro, Im still awaiting an appointment wiv a general physician at the private hospital.... im having a bad fatigue spell and ive noticed more twitching and little jerks which seam to make a kind of clicking noise like in your jionts bizarre... the plot thickens ....
Just read that book speedbumps by teri garr what an insparational read, its taken me all of a morning to get through, real exciting life altogether, and of course a long and arduace battle for a ms diagnosis for the symptoms she had been getting for over 20 years, kind sounds familiar...

Well take care doll have a good day and let us know how you get on with the next mindblowing medical profession experience lololol
janito.xx.

 
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