worst attack so far - Multiple Sclerosis Message Board

duttin · 10-02-2007, 11:26 PM

This all started sunday afternoon,my legs started to feel wonky and out of sorts,nerves started jumping,the burning tingling and numbness had set in.

I got up monday morning and had no use of my legs,the brain and the legs were not responding to each other and the rule of thumb is 24 hours,well when the 24 hours were up I caved in and called my neuro's office.they were closed.

Well today no different,I was tripping over the fronts of my toes and I wear leg braces to prevent that.After 3 calls to my neuro it was try to wait it out until thursday,I have an appointment that day.

After falling twice in my kitchen and losing left eye vision,that was it,I called my x - hubby and off to the ER.I live in a small community the local ER has no neuro on call.The ER doc thought he was gonna be a jerk and tell me he couldn't treat me.

I got stubborn and bluntly told him to wake my neuro cause I needed help now not thursday.he ran blood work and urine sample.Came back slightly elevated sugar and another darn urinary track infection.He done the standard ER neuro test and then he rudely woke my neuro and told him I had extreme right side weakness.lost the function of my legs and my pain level was off the charts.They gave me demerol to take the edge off the spasticity pain and started solu-medrol treatments.

They can only give them to me at 500mg intervals,I don't do well at 1000mgs as my insulin level shoots up to high.So I gotta go back to the ER tomorrow for next dose and demeral inject until I see my neuro on thursday.

I told the ER Dr. I was not a med seeker ,but I needed help.

This has far been my worst attack yet,my biggest fear losing the use of my legs as they aren't good anyways.

Please listen to your bodies and don't let any DR. set ya aside.I did get some slight releif but that was from the pain meds.

I soley beleive this attack was brought on by tramatic stress,I slowly been coping with.

This is my third attack since March and they have all involved stressful situations ,so if all possible try to advoid them

Just neede to ramble

T

parisiancat · 10-03-2007, 02:43 AM

You poor thing. Sounds like it's been a tough few days. My thoughts are with you. I really hope you get some relief and see improvement soon.

I think you're right about stress. It cannot be underestimated as a factor in attacks.

Hope you're getting some rest and relaxation.

Cat x

cindys601 · 10-03-2007, 04:19 AM

Hi T~

I just wanted to wish you some healthy wishes and hope you feel better real soon!!

I agree that your break in was the culprit in your attack. Get some rest and take care of yourself!!

Cindy

kimpossible67 · 10-03-2007, 05:03 AM

Quote:

Originally Posted by duttin

This all started sunday afternoon,my legs started to feel wonky and out of sorts,nerves started jumping,the burning tingling and numbness had set in.

I got up monday morning and had no use of my legs,the brain and the legs were not responding to each other and the rule of thumb is 24 hours,well when the 24 hours were up I caved in and called my neuro's office.they were closed.

Well today no different,I was tripping over the fronts of my toes and I wear leg braces to prevent that.After 3 calls to my neuro it was try to wait it out until thursday,I have an appointment that day.

After falling twice in my kitchen and losing left eye vision,that was it,I called my x - hubby and off to the ER.I live in a small community the local ER has no neuro on call.The ER doc thought he was gonna be a jerk and tell me he couldn't treat me.

I got stubborn and bluntly told him to wake my neuro cause I needed help now not thursday.he ran blood work and urine sample.Came back slightly elevated sugar and another darn urinary track infection.He done the standard ER neuro test and then he rudely woke my neuro and told him I had extreme right side weakness.lost the function of my legs and my pain level was off the charts.They gave me demerol to take the edge off the spasticity pain and started solu-medrol treatments.

They can only give them to me at 500mg intervals,I don't do well at 1000mgs as my insulin level shoots up to high.So I gotta go back to the ER tomorrow for next dose and demeral inject until I see my neuro on thursday.

I told the ER Dr. I was not a med seeker ,but I needed help.

This has far been my worst attack yet,my biggest fear losing the use of my legs as they aren't good anyways.

Please listen to your bodies and don't let any DR. set ya aside.I did get some slight releif but that was from the pain meds.

I soley beleive this attack was brought on by tramatic stress,I slowly been coping with.

This is my third attack since March and they have all involved stressful situations ,so if all possible try to advoid them

Just neede to ramble

T

Good for you for standing up for yourself with the ER doctor! It's too bad, if we aren't bleeding or convulsing, they think it's all in our heads. The view on MS has GOT to change! We hurt, it's real, deal with us!

If stress is a factor then I should be blowing at any minute now. I'm going thru a divorce and having to move myself. Talk about STRESS. It's awful and all I want to do is get in bed and go to sleep. I sure don't need my legs or my eyes to go at this point, it'll have to wait until I've moved

glamour girl · 10-03-2007, 06:03 AM

Well good on you for being firm enough to demand treatment. What a frightening experience for you. Luckily your on good terms with your ex- husband. Must be nice to know you can call on him when needed.
Losing my sight would be my biggest fear i think. Hope you start feeling better soon.
Your sooo right about stress to worsen MS.. My dad passed away couple of weeks ago. Even though he was ill,and knew the day would come soon.To get the call at 2am, that news shocked my body to the core.

Hope the pain meds have kicked in for ya. My Prayers are with you hon..