I went to see the neuro-ophthalmologist yesterday. I am confused more than ever now! After waiting an hour to be seen, the doctor called me back (hubby went with me). The doc asked me lots of questions and I took my films and reports. He asked if I had ever had a VER and I said no. He had me cover my left eye and read the chart. He had me cover the opposite eye and do the same. He had me follow his finger and touch his finger and then my nose. He had me walk on my heels, toes and then normal. He then had me do the heel-toe walk. After looking at my films (on CD), he said I have a couple of spots on my brain, but that they could be caused by migraines. He said I don't have MS, that I don't have symptoms of MS. I am really, really confused right now and somewhat depressed. I feel like I am going crazy! I just want to run away and hide, hoping all of this will go away. I haven't worked in about 6 months and I know my husband and kids are disappointed in me. This is harder to bear than the thought of having MS!
Oh yeah. He never dilated my eyes or did any testing with any type of machine. I thought that was strange! I'm still having trouble seeing on a daily basis with things being darker and black spots and my peripheral vision is gone, but nothing is being done about this!
The neuro-ophthalmologist said if I ever lose vision in my eye then I can come back and he will check me again.
He also said I can go to Hopkins to hear it again that I don't have MS. I am just about ready to cancel the trip to Hopkins for the 19th. It's getting harder to make people believe that there is something wrong with me! The neuro-ophthalmologist said it could be because I internalize stress. I did a search for symptoms of stress on the internet and while some symptoms may be the same as what I am having, I have way more symptoms that are consistent with MS. My hubby wants me to cancel the trip to Hopkins and just listen to what the doctor said yesterday. I don't think I can do that.
I guess I want to know if it's possible to be in the early stages of MS and still be able to walk properly, not have eye problems that is obvious to the neuro-ophthalmologist, etc? He also said since I have been going through this for 3-1/2 years, that there would be changes to my MRI.
I swear I feel like I should be looking into a mental hospital at this point! With each doctor I go to, I feel like I'm losing my credibility with my family.
I know all of you will believe me when I say there is something very wrong with me...maybe MS...maybe not, but SOMETHING!
I'm sorry for making this so long, but I needed to talk to someone and get this off of my chest.
I would appreciate any insight anyone can give me.
Lynn, I wouldn't cancel the appointment -- if you need to hear it again that you don't have MS (and it's true), then hear it again from a fine facility you can trust like Johns Hopkins!!!
It's possible the eye doc was ONLY looking for signs of conditions (like Optic Neuritis) that are indicators of MS. It's also possible that your eye problems are not neurological in nature or at least, that the optic nerve isn't affected. I just posted yesterday about how doctors can be somewhat myopic when it comes to their specialty. If your vision isn't a crisis, you might want to table that for a minute -- a month is not a long time in the grand scheme of things.
Yup, if it were me, I'd keep the appointment at Hopkins and if you don't get a dx, it will be GOOD news! However, then it's back to possibly finding a good neurologist or at least getting guidance about what type of doctor to go to in order to find out what your problems and spots might be caused by.
(You also might want to call up JH to see if the CD is okay or if they prefer the actual films.)
Thank you! I did contact Hopkins and they said the CD is fine.
I believe the doctor yesterday was only looking for things related to MS...and nothing more. Between the MS specialist at Duke and the neuro-ophthalmologist yesterday, I have been told my symptoms are because I am significantly overweight, poor diet, lack of exercise and stress. I have been watching my diet and losing weight and have tried to exercise, but my symptoms are still here big time!
Hi Lynn. Sorry to hear that you had another bad day with doctors. I have to tell you, I totally agree with Bearygood on this one. I would keep the appt, see if things change between now and then, symptom wise..and possibly request another MRI ..they can change every few months...
The good news is you DO NOT have optical Neuritis! You dont want it, trust me! Im glad that your eyes are healthy..they are SO important!
hang in there girl....youre doing well at being proactive.
I'm glad to hear from you! I am still going to see what happens and may still keep my appt at Hopkins. I have a job interview on Thursday for a job outside the house. I think that's what I need right now is to get outside and do something constructive with my life. Wish me luck for the interview!
I can only try to understand how frustrating this is for you. You poor thing. Feels like your getting the run around huh ??
Definitely keep you appointment at Hopkins. Maybe it will be THEM that give you the answers you need. Good luck for yr job interview too.
I think right now I am going to cancel the appointment at Hopkins and go back to the neurosurgeon I went to 3-1/2 years ago for a followup. I know I have 2 herniated disks in my cervical spine and I am going to request an MRI of my lumbar spine. I had a bad fall when I was 12 years old on the tip of my spine. I had MRI's of my lumbar and thoracic spine 3-1/2 years ago and again a few months ago. Herniated disks can cause pain, numbness and tingling, so this is the route I am going to take for now. This, combined with stress, could be my main problem. I will ask the neurosurgeon if by any chance the problems with headaches and vision can be attributed to the disk problem and see what she says. I know 3-1/2 years ago she said that many years down the road I would most likely need surgery to repair the disks in my neck and put a plate in.
Besides, I may be starting a new job next week, which would be GREAT!!
If it happens to be MS, it will show itself at some point.