Re: Tomorrow's Neuro Appt.
I think, like everything else with this stupid disease, that its different for each person, and can even be possible to be different at different times.
I know that doesnt really help you, but like you, I used to LOVE hot showers...about 6 months before my dx, I started getting terribly dizzy and tired when I got out...by the time I attempted to use the blow dryer on my hair, I was nearly in tears! My husband thought I was cracking up! We had no idea about MS, or that this was a symptom. It wasnt until I had more symptoms, wound up seeing a Neuro, and his nurse was taking a history, asking questions, when this came up...and I was like "yeah, yeah, that is VERY familiar!"...
A year later, I find that sometimes, I can handle hot showers...especially when it is cold out, or when Ive got the air conditioining blasting...other times, my body resorts back to shutting down. I have also learned that if I start out with hot water, and gradually cool it down to tepid before getting out, I tolerate it much better...
So, I dont think there is a definate answer to your question. Unfortunatly with this disease, nothing ever stays the same for long..things constantly shift and change...and no two cases are exactly alike, so its really tough to give you an answer.
I did go back and read your story, and its interesting. Dont be offended when I say that everyones story is almost the same, and yet so different that its mind boggling. Youre seeing a Neuro, which is the right place to go from here...be brave, be open minded and remember that its a terribly hard thing to dx and you MIGHT not walk out with all the answers...the most important thing for you to do is connect with this doctor, hopefully he will listen and you will respect him. Dont overwhelm him with too much info, you certainly dnt want him thinking that you have EVERYTHING wrong with you...instead you want to concentrate on the most recent, relevent and troubling issues and let him take it from there...hopefully he will order more tests or at least give you an honest opinion. He might not want to do anything for 6 months; what is really important is once you see him, youll have a place to come back to should you have new or reoccuring symtoms...and be given comfort that this is manageable...the symtoms, are treatable, even if the disease isnt.
Wishing you all the best, please post after your appt and let us know how it went. Ill be thinking of you..
RRMS- dx 05