Im 42 years old been having some problems with numbness in face, feet, hands ,legs and arms , feet and hands mainly the worse. Also cracking and popping of neck on movement. Neg MRI and xray of cervical spine, Had MRi of brain it showed I have 2 small focal areas of T2 signal hypertensities at left cerebral hemisphere, one at left centrum semivale and another at subcortial white matter at top of brain. Says May represent small focal areas of Ishemic change although possiblity of plaques of MS cannot be excluded because of age. Had MRi of brain 5 years ago and nothing showed up. Sending me next week to MS specialist . I am concerned and I dont know what any of this means , I have a bulging L5 disk could this be where all my numbness is coming from . I have alot of other symptoms like vertigo , trouble finding the word Im trying to say , stagger alot, floaters ... just to say a few . I dont think I have MS . I have had lots of bloodwork everything is good.. Any ideas or anyone with same thing going on Id really like to talk to someone. Anyone???
It can be very scary not knowing exactly what is going on in your body. I thought, "Either I have MS or I have a tumor" and when diagnosed with MS-I was relieved. Get some results from the specialist and then see where we are. We tend to go to the worst case scenario with things. Get some data first.
Hi, shiloh. Blood work is used diagnostically in MS to rule out other things. It might be possible that some of what you're experiencing is due to some abnormalities on your lumbar spine but your symptoms, along with the fact that your brain MRI showed what it did is suspicious for MS. The next right thing is to do exactly what you're doing, going to see a specialist. MS "lesions" have certain characteristics like shape and location so hopefully they'll be able to shed some light on the situation and it's possible that they might order additional MRIs and other tests.
Good luck to you! Let us know if you have any more questions and please keep us posted. My dx was not so long ago that I don't remember how absolutely shocking it is to hear the phrase, even as a suspicion!
One other thing -- make sure they included a test for B-12 deficiency. Some doctors do NOT include it as a matter of course. Also, if you even think that Lyme could be a possibility, find out what lab they sent your tests to -- not all labs are good at dxing Lyme but the problem with that disease in general is that there can be false negatives AND false positives! (I'm mentioning this because the sx AND MRIs can present exactly the same in the two diseases and not that the popping/cracking of the neck you mentioned can't happen in MS, which is kind of an "anything goes" disease but that sx specifically, is not uncommon in Lyme.)
My B-12 was great right where it is supposed to be , I work for a Dr and asked him about my numbness and he said it he didnt think it would have anything to do with my spine. The numbness is so bad my hands and feet burn and tingle. Thanks for your prompt response and concern and its greatly appreciated
Wow, working for a doctor must come in handy at a time like this, LOL! Sounds like you have a great support system and are on point with what you need to do. We're here is you have any questions and of course, for support. I thought I knew what MS was until I got it -- then I realized I knew hardly anything about it! Many misconceptions associated with this condition.
hi Shiloh, Just wanted to add a thought to your thread. I have MS, been dx for over a year now...however it all started out with tingling and numbness mostly in my hands and fingers. Ive had 4 series of MRIs and it was until the past series, 2 months ago that they found bulging in my C4-C5 area with stenosis. I see an orthopedic guy who specializes in Cspines on Friday! Im absolutely wondering if my numbness and tingling arent more spine related then MS related!
Look for a post on this on Friday and Ill tell everyone what I learned at the doctors, but from my preliminary reserach, in this area it can definately affect your fingers, hands and arms! Unforutuanatly, my other symtoms are all classic MS symptoms..fatigue, weakness, eye issues (optical neuritis) so its not like Im expecting my dx to be wrong or anything,, just hoping that there is something I can do to regain use of my fingers and hand without the amount of pain I have suffered over the past 15 months!
Anyway, Im sorry you are going thru similar issues. I know how painful and frustrating it can be...but welcome to our board and please continue to post as questions arise.
shiloh, Ill be thinking of you on the 8th....FYI, my MS specialist and my regular Neuro REFUSE to believe that my pain could be caused by anything other than MS pains.. I find this hard to believe. Because I have done enough research on my own, Im pursuing this with the Ortho guy. I wont rest easy until I know that nothing short of surgery can be done to alliviate this pain. Its so bad, and Ive tried everything from Nerve meds (lyrica and neurontin) to topical things (capsium) to supplements like Omega 3-6-9 and all the other anti-inflamatory supplements I can find (tumeric and others). Although I am still taking the supplements because they seem to help in some small way, its not taking away the constant pain. I have to get another opinion from someone UNbiased!
Feel better and keep us in the loop!
I hope all goes well for you .. My problem is I cant take pain meds or anti inflamatory meds, I have Ulcer and anything I take like that Im rolling in floor with severe pain so I steer clear of all medication I dont take anything. I went for PT for 6 weeks with no relief in the numbness and burning. Tried to get disc back in place but it didnt help with numbness. My Dr is test crazy . I had EMG of both arms No carpal tunnel.I've done had surgery on both hands with no relief.
Ugh. I had the carpal tunnel tests too, its not that. And truthfully, I didnt like trying the meds so no big loss to me that they didnt work. I would recommend you talk to your doctor about supplements, some of them are safe with an ulcer- and some of them do help....but dont take anything without approval from your doc first. i was kind of hoping PT or Chiro care would be the answer...Ill keep you posted. Meanwhile, take care of yourself. Keep us posted on your progress.