Strange skin oil odor, my liver and my MS - Multiple Sclerosis Message Board

MSWONTWIN · 11-15-2007, 05:33 AM

1) If this milk thistle is bad for my MS, then why are my symptoms going away?

2) This supplement plays a part in healing the liver. My skin odor is gone, so it must be a liver problem

3) Copaxone does NOT require liver studies

4) I have had liver studies done LONG before copaxone anyway, and they have always been a little off. I was told, however, that they were never in the danger zone.

MSJayhawk · 11-15-2007, 12:08 PM

Odors can be emitted from various organ malfunctions. Doctors are now realizing the extent of this. Cancers can emit odors that dogs can identify long before they show-up on MRIs. Body odors can also be influenced by the foods we eat and genetics.

I can understand your concern. I do not notice smells like my wife does! I suppose it is a blessing to me and a PAIN to her!!

I believe that their is likely a smell associated with MS. When I experienced seizures, my Service Dog recognized these in advance. He also knows if my day will be a good day or not.

Congratulations on getting a solution to your liver problem!! And, thanks for sharing!!

MSNik · 11-15-2007, 06:15 PM

Just a quick question; are you aware that during your time on Copaxone, Liver Function tests should have been done at least every 6 months, (more often if your doctor ordered them) and that this would have picked up any Liver problems? And, also are you aware of just how seriously bad Milk Thistle can be for MS patients?
Im glad you are feeling better, however you are doing two things which any Neuro will strongly advise you NOT to do. Treating what you perceive to be a liver problem is very serious stuff and treating it with Milk Thistle is not an FDA approved approach...please go see your Neuro and also check on the effects of Milk Thistle on MS...
I wish you continued feel good days..

Bearygood · 11-15-2007, 06:18 PM

MSWONTWIN, I'm not sure about causation but so much is unknown about this disease, who knows? One of the concepts I do believe is that for at least some of us (I believe we didn't all get here the same way) MS happens because there's a predisposition and then something happens to trigger it. Toxins in the body can certainly be vicious -- I'm not going to dispute that!

Re: Milk Thistle, it's definitely the supplement that's most widely suggested for liver support. I have a friend with Hep C who's been on it for years. Glad to hear it's helped you and hope you continue to feel better.

MSWONTWIN · 11-15-2007, 09:57 PM

I believe I have found the cause of my MS (mine, not anyone elses). I wouldn't be typing this unless I was almost positive. Please read......

I am 28 years old. I have had bad symptoms of MS for the past few years and was diagnosed last february. I've been on Copaxone (no noticable changes with that), I've done the solumedrol (only helped to an extent) I'd go more into that, but you've heard it all before.....

MORE IMPORTANTLY....

For the past 11 years I have had this strange odor emiting from the pores of my skin (my chin, the creases of my nose, behind my ears), especially an hour or two after eating fatty foods. This odor is not limited to this, mind you... it was always there.

It is a putrid smell, kind of like rotting garbage. People really never noticed it unless they were close enough to me, but I was always aware of it all the time for years and years.

I have always had cystic acne as well. That stinks too, in two ways of course.

Searching NON-STOP on the internet I have never found anyone with the same oily face odor problem. Only found loads of informations on pets with this problem.

A couple weeks ago I finally found a new post on a messege board of someone with the same strange odor about their face.

A doctor gave a reply to this person that set light bulbs off in my head. He mentioned that it probably has to do with his liver.

It got me thinking even further. The liver filters toxins in the body. It made perfect sense to me. Obviously smelling like this, my body was not filtering toxins properly.

Thinking even more, I realized I have a plethera of herbal supplements on my shelf, one being Milk Thistle (1000 milligrams). This has been clinically tested for liver treatment.

This is the most amazing part .......

NOTE: I'm not suggesting to anyone to try this unless they have the same odor problem..... ALSO IF YOU'RE ALLERGIC TO RAGWEED TALK TO THE DOC. I have no clue how anyone else will deal with Milk Thistle or whether or not it will help you. TAKE THIS WITH A GRAIN OF SALT

I've been taking about three times the recommended dosage of 1000 milligram Milk Thistle every day for the past couple weeks.

The odor is GONE. I have not breathed through my nose and not smelled it for 11 years.

EVEN MORE AMAZING.... My energy level is off the wall (I feel like a kid again) I can run in place again. My L'Hermittes sign is GONE, no more "zaps". My fingers can move as good as back in 2001. My sex drive is back. Some of my numbness and tingling is subsiding. This is only after two weeks of taking this.

Unfortunately I'm still having trouble emptying my bladder. I tend to think this is a perminant problem, but I've learned to accept it. My abdominal hugging spasm obviously still requires baclofen and cyclobenzaprine. I'm definately going to keep up with my Copaxone treatment too.

I have a strong feeling that since my liver was not filtering toxins correclty, my T cells were trying to fix the problem, in turn, eating my myelin on the spine and brain.

I could be wrong, but if you could just smell the odor I formerly dealt with, you'd at least agree that my liver was not filtering properly.

I am so excited about this and I wanted to share it with you. I'm not here to spread false hope. That is not my intention.

For all I know my next MRI will look like hell. I'm not due for my second one for about a year. All I know is symptoms are subsiding much better than they ever have with anything. Solumedrol has nothing on the relief I'm feeling now.

Please pass your thoughts, I need to talk to people about this.