On the dx mery go round - Multiple Sclerosis Message Board

cokeclanmom · 11-17-2007, 10:55 AM

I have been having problems with stabbing pains in my face and head, tingling in my arms, legs, feet and hands. I have developed a tremor in my right hand. The lastes is my blood work show that my vitamin d levels were low. I have started my a vitamin d supplement but do not understand why they were low. My MRI scan was normal but the symptoms are not going away. Things will get better for a couple of weeks but will then flare back up. Lately, the numbness and tingling will wake me up during the night. My neuro has danced around the idea of MS. Does anyone else have these symptoms? This is all very draining.

Thank you for your advice

Cokeclanmom

Bearygood · 11-17-2007, 12:58 PM

Hi, cokeclanmom. Tingling is a common complaint with MS and the other things you're describing could be sx of MS as well but not MS alone. Was your MRI done with and without contrast and did they also do a c-spine MRI? Since disease activity is what causes lesions, they often don't show up right away. Re: the D deficiency, recent research has pretty much confirmed that this can increase the risk for MS and even possibly help it in those already diagnosed and without a clinical deficiency. These findings are specifically in regard to D3 (cholecalciferol), which is a very inexpensive supplement to buy. Are you supplementing at the suggestion of your doctor and how much are you taking? I'm not sure that the things you're experiencing can be attributed to a D3 deficiency but they CAN be present in the absence of enough B12.

What does your neuro say you should do at this point?

cokeclanmom · 11-17-2007, 01:11 PM

Thank you for replying. My neuro said to take 1.25 mg vitamin d weekly along with the multivitamin and omega 3 fish oil that I was already taking. She said we would possibly do a spinal tap if the vitamin d did not help. She said there was nothing else they could at the moment. I have also had 2 UTI infections within the last three months. It seems like everyday there is something new!! My mri was done with and without contrast and no I have not had a c-spine mri.

Bearygood · 11-17-2007, 01:26 PM

Are you taking D3 (cholecalciferol) or just a regular D supplement? If you're unsure, look at the bottle. Whatever you're taking is measured differently than what I have so it's hard to compare to the doses I've heard recommended.

Fish Oil is great for inflammation and brain health and one of the most commonly recommended supplements for MS. If you can, try to buy brands that warrant the fish is from mercury/toxin free waters. The brand I buy is Spectrum.

Bearygood · 11-17-2007, 01:29 PM

Here's a recent thread you might be interested in taking a look at:

[url]http://www.healthboards.com/boards/showthread.php?t=544686&highlight=cholec alciferol[/url]