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Old 11-19-2007, 06:37 PM   #1
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Stacy1403 HB User
Question When do I know if I should start a steroid treatment?

When I was at the MS clinic this past May the neurologist put me on the steroid drug Prednisone for 20 days to help me get over a relapse I was having. I left with several refill prescription of Prednisone but I don't know when I should take the steroid. Obviously I don't want to take it if I don't have to. How bad should I be before I go on a steroid treatment. Should it only be a bad relapse or should you use it even for minor ones? I should say that my neurologist isn't available to me all of the time...I travel 7 hours to the Ms Clinic. I can try to get hold of them by phone, but I thought I would see if any of you have experience with this.
Thanks for any information you can give me.

 
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Old 11-19-2007, 06:56 PM   #2
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Bearygood HB User
Re: When do I know if I should start a steroid treatment?

Stacy, I don't but I'm sure others will have insight. I've never been on steroids and when I asked my specialist how will I know when/if I need to go to the ER, etc. (), he basically first said "you'll know" (a little scary, huh?) and then he added, "you call me". So, while I'm sure that others will be able to chime in, chances are that before filling a prescription, that's what you should do too! (I'm assuming there's a 24 hour answering service on their phone...)

Also, I know that sometimes people go on IV instead of pills so that's another reason to not take the plunge until you speak to your doctor -- I don't know in what scenarios one is used over the other.

In any event, let's hope that prescription stays in your house forever or if not, for a very, very, very long time!

 
Old 11-19-2007, 07:08 PM   #3
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hitdog042 HB User
Re: When do I know if I should start a steroid treatment?

Quote:
Originally Posted by Stacy1403 View Post
When I was at the MS clinic this past May the neurologist put me on the steroid drug Prednisone for 20 days to help me get over a relapse I was having. I left with several refill prescription of Prednisone but I don't know when I should take the steroid. Obviously I don't want to take it if I don't have to. How bad should I be before I go on a steroid treatment. Should it only be a bad relapse or should you use it even for minor ones? I should say that my neurologist isn't available to me all of the time...I travel 7 hours to the Ms Clinic. I can try to get hold of them by phone, but I thought I would see if any of you have experience with this.
Thanks for any information you can give me.
Its very possible the refills were a mistake by your doctor. I've been on prednisone twice and neither time did I have refills. I would seek your doctor out on this one.

 
Old 11-19-2007, 07:15 PM   #4
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Re: When do I know if I should start a steroid treatment?

Stacy, sorry you are feeling bad enough to consider steroids as an option. I will tell you that I have been given refills on my steroids pack, and I have filled it once or twice, but only after calling my doctor to be sure its the right thing to do.
Another thing you should be aware of, is the dose pack is really a very low dose of steroids...Im figuring you are taking anywhere between 5-50 mgs a day, with a taper down? Can you confirm that? When you do the IV, its 1000 mgs a day....so much higher, with so many more side effects. However, all steroids do have side effects, and they shouldnt be abused.
I really would call the doctors office, leave an urgent message and when you get ahold of the doc or even his nurse, explain your symtoms in detail- be able to discuss how long they have been happening and if they are changing. Make an informed decision based on their thoughts....if you cant be checked out, then its the next best thing. Do you have a local GP whom is familiar with your situation? Even he/she would be better then just self medicating- at least they can monitor you while you are on them. You need to be concerned about sugars elevating for one thing...usually they will do a simple glucose test on you when you are finished the round of steroids, if nothing else...but again, you are talking Prendisone pack...its not very high to begin with..
PLease try first to talk to your Neuro....you want to save Steroids for when it is absoutely necessary, and NOT abuse the idea of using them...like Bearygood said, you really do KNOW when things just are that bad! Continuous steroid use renders them less effective, and thus you need more and more of them to get the same effect....dont use them, unless you really think its time.
Good luck, and feel better soon.
Nikki
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RRMS- dx 05
Rebif 2005-2011
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"Every New Beginning Comes From Some Other Beginning's End"

 
Old 11-20-2007, 07:41 AM   #5
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mitch512u HB User
Re: When do I know if I should start a steroid treatment?

Stacy,
I just finished a round of prednisone a week ago, no refills on my Rx either. Does sound a bit odd.
Mitch

 
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