I just wanted to share something with you all. I have read so many horror stories of MS patients that can't tell their employers that they're sick, or worse, they tell & get absolutely no support from their employers. Well, this week I decided i needed help. I have been so exhausted lately and I needed to find a way to get myself some rest. I have 2 little kids (2&7), so it's not like I get to catch up on my rest on the weekends when i'm not at work! I also can't really work shorter days during the week because I would just have to pick my kids earlier & again....not really restful!! So I talked to my boss (who already knows i have MS) about working from home one day a week. He didn't hesitate for a second before saying he was 100% in favor of it AND that he would talk to his boss (our vp of operations) about getting me a laptop so that i wouldnt have to use my home computer & it'd be easier to work from home on any other days when i'm just not feeling up to getting to the office.
Our VP approved it without even asking WHY i wanted to work from home. I felt that they had been so good to me that i owed him an explanation. Professionally, i didn't want him to think i was just burned out or something else. So yesterday I went & talked to him about everything that's going on (getting diagnosed a month ago, starting on rebif last week, etc etc) and he was FANTASTIC!!!!! Told me that I have proven myself in my job and that they will do whatever it takes to help me get & stay healthy. He even told me that staying healthy will be a big part of my MBO's/goals for next year and that that was my priority. All i have to do is tell them what i need and they will do their best to accomodate me. I even told him that my biggest frustration is that my memory is just not what it used to be. I have always been able to remember EVERYTHING about what i have done at work, who i talk to, etc. He kind of laughed and said "well, you'll just have to learn to take better notes". No judgments, nothing.
I can't tell you how blessed I feel to work in such a great environment. I know I am one of the lucky ones, and I apologize if I have upset someone by sharing this, but I wanted to put this out there for those that haven't been able to tell their employers so you could see that it doesn't always have to be as bad as you make it out to be. There are wonderful people in this world (some on this board!
Have a wonderful day!