don't think il get put right. - Multiple Sclerosis Message Board

zorm · 01-03-2008, 09:03 PM

i felt positive today and now its hit again, the last weeks over the holiday what i went through.i was sleeping and hardly able to wake upi had fevers i couldnt get around cause i was so dizzy.then the incontinance i haven't benn right at all. its dawned on me i may never get put right. my dad tried to call neuro yesterday telling him this he didn't get back cause i was so ill for so long don't take it seriously.i think im damaged this shouldn't have happened. if it was virus or something how will i recover im not right now. the headaches were so bad. the whole thing was like a daydream. i was never really me after any of these neuro problems and i think im gone mentally and ohysically up top. i just dont feel right i dont want to cry. i used to be fine now i get branded cause i get so confused and in this state they wonder if im a nutter. i need urgent help i can't tell you how bad it is i feel like i have been ina half dream. im sorry to be onhere again. i dont know what to do i cant take another day withese symptons- but i think its too late. my gp is rubbish. my parents dont know what to do cause the ers think its fine cause im under a neuro. this has got to come to an end i can function to write this today. but this is because its a life line to me and i appreciate that but i cant get out the house around the room or even out of bed and its wierd i felt like i could hardly wake up. not normal sleeps at all.

MSJayhawk · 01-04-2008, 05:16 PM

If you need to cry, cry. Bottling up your emotions adds to the debilitating effects. I have been through what you are experiencing. I have felt the way you are feeling now. You are not a "nutter", but you are a child of God and you are important. You have a family that shows concern and wants you to mend.

"This too shall pass" is a phrase you might want to remember and take to heart. What you can do, do it. That which you can not do, don't sweat it. Take heart that "this too shall pass". I know, I have been there. 20 years from now you may be writing a similar piece when you chance upon another soul in the same position you are currently experiencing.

Lastly, I shall lift you up in prayers. You are not alone- ever!

MSNik · 01-04-2008, 06:08 PM

Zorm, please forgive me for writing this, and I truly hope youll understand why I am, but I have to ask....are you taking any anti-depressants?

I went back thru your history of posts. I saw every single disorder mentioned which at one time or another you questioned having. It doesnt appear that any doctor who has done any tests on you has found anything positive to diagnos you with. You have a history of questions which concern me. Its very obvious that you arent feeling well. My heart goes out to you. Honestly, I dont mean this question to be nasty in anyway- but you have been depressed and even mentioned NOT being able to go on..several times.

Have you spoken to any of these docs about putting you on anti-depressants or even anti-anxiety drugs? Has anyone even spoken to you about the possiblity that your symptoms are actually symptoms caused by psychological issues more then phyisical problems? Im not saying you dont have something wrong with you, or that you are psychologically in need of help, but I am wondering if couldnt benefit from being under the care of a doctor who might prescribe something to help you handle things better....not knowing what is wrong with you is the single most horrible thing in the world. I grant you that you have every reason to be distressed..but getting help handling this might not be a bad idea.

You speak of your parents being concerned. What have they done to help you with this? Taking you for test after test and doctor after doctor doesnt seem to be helping you. Do you have a trusted PCP who might actually give you the help you need or refer you to someone who can? Are you telling your parents as much as you are telling us, how many things are bothering you and how many things you have thought about? Its not all healthy Zorm, and after reading todays posts, I really hurt for you.

Please talk to your family and your primary care doctor about all that is going on with you. Youve got to find some answers, and unfortuantely, no one here is going to give you the medical help you need...we are here for you to listen though- we will support you anyway we can...and I honestly hope you understand that this post was meant with concern, not citicism.

i wish you happier days ahead.

cyprian1 · 01-07-2008, 07:04 PM

Quote:

Originally Posted by zorm

i felt positive today and now its hit again, the last weeks over the holiday what i went through.i was sleeping and hardly able to wake upi had fevers i couldnt get around cause i was so dizzy.then the incontinance i haven't benn right at all. its dawned on me i may never get put right. my dad tried to call neuro yesterday telling him this he didn't get back cause i was so ill for so long don't take it seriously.i think im damaged this shouldn't have happened. if it was virus or something how will i recover im not right now. the headaches were so bad. the whole thing was like a daydream. i was never really me after any of these neuro problems and i think im gone mentally and ohysically up top. i just dont feel right i dont want to cry. i used to be fine now i get branded cause i get so confused and in this state they wonder if im a nutter. i need urgent help i can't tell you how bad it is i feel like i have been ina half dream. im sorry to be onhere again. i dont know what to do i cant take another day withese symptons- but i think its too late. my gp is rubbish. my parents dont know what to do cause the ers think its fine cause im under a neuro. this has got to come to an end i can function to write this today. but this is because its a life line to me and i appreciate that but i cant get out the house around the room or even out of bed and its wierd i felt like i could hardly wake up. not normal sleeps at all.

i agree with the other responses, but in reality , none of us will ever be put right .. that is in itself a very depressing notion , and you may need anti-depressants , nothing shameful there .. and i am new here, but seems you have a list of ailments, between my primary & secondary symptoms, i ahve 118 symptoms .. ??? i cried , release for me, expressing whether it it crying, or grieving or anger or not are all valid emotions and get triggered by this MS .. time for a review of meds, symptoms , etc ... i sometimes wish i were ana ngel, so i can wipe away the inner pain , as most of us can bear the physical .. do not allow yourself to sink too low into depression .. it can seem like a bottomless pit, i tell ya. keep posting and expressing and , grieve already , cry and ask why all you want, but get help .. you are reaching out here and that is good .. people will lift you up in spirit, but you make the decisions ... so please update if possible as to your emotional well being, as that can make you ill physically and spiritually .. Keep up on all three .... cyp1