New here - Multiple Sclerosis Message Board

cyprian1 · 01-07-2008, 08:22 AM

hello - good a.m. to everyone .. i am writing in lower case , finger curl and cramps ... well, i just wanted to introduce myself ...

my screenname is cyprian1 .. ugh .. awkward moment .. i have been dx'd going on 7 yrs. now .. pretty sure i am relapsing-remittting , just from what info i have gleened from here .. i have had 1 relapse that i am aware of .. july of 2005 .. and have either gained a few new "tricks" , lol , or have retained some older only a little worse ..

i live in NM now going on 2 yrs., and will be going back to florida , hopefully before next winter (that's what i said last winter, lol) ....

hey, i am still walking, with a cane , and will be going back to the neuro for a special talk .. new testing, new techniques, meds etc ... i was also dx'd w/fibromyalgia , but now i am not so sure about that ... so a much needed education is what i am in need of ...

learning new info everyday, and having learned to accept the hand i was dealt, kinda thought , hey it's gonna be okay ! til the relapse .. i am doing okay, but definately need to get re-educated about MS .. my info is from 5-6 yrs ago ? lol ,,,

oh well, you see you can learn something new everyday, and i like that ... i also have depression from yrs. ago .. so i will get weepy or grouchy .. and i hope this can be the start of something good ...

i didn't see a welcome board , and i read the rules and tried contacting the mods, since my skilss are not the best ... maybe y'all can steer me or guide me and fill me in on how this works , as i would have to re-read the rules over .. lol

sassy8 · 01-07-2008, 10:38 AM

Welcome to this site. You've had ms for sometime. Are you on any ms medications? I was diagnosed with ms in 2007, but have had symtoms for about 3 to 4 years. Just keep reading the posts on this site and you will learn alot and get the support that you need. Ask any questions that you have. Usually on the top of the posts it says moderator I think that you just click on those. Look forward to learning more about you. Sassy

cyprian1 · 01-07-2008, 11:24 AM

thank you for the welcome , yes , i have had it for a bit .. lol .. and i have a lot of catching up to do ..

i currently take for secondary symptoms, the only pain reliever is Ultram ER and a bunch of anti-depressents and anxiety meds .. at that time rebif was new and i tried it for about 6 months and it started to leave injection site nodules .. yucky lumps .. so my neuro and i have decided that maybe avonex or avonex im (?) .. so much new and am glad i am here , between what i learn and what i read i feel better about not knowing and dumb for not following along all these years .. ttyl and thanks sassy8 , cute handle ...

duttin · 01-07-2008, 02:28 PM

Welcome To Our Forum.

I'm Wriying In Large Caps Do To Optical Neuritis Effecting My Vision.

I Was Original Diagnosed In 1998 And Rediagnosed In Dec.2006.

Currently On Rebif,i Had A Time Period Where I Had The Little Lumps ,but They Soon Passed.

Keep Asking Questions Many Will Answer.

Your Doing Great For Having Only One Relapse.

I Have Spms.

Welcome.

T

april1848 · 01-07-2008, 04:46 PM

Welcome, Cyprian.

It's impressive that you've had MS for that long with few relapses, and no meds. I think that's great.

The people here are awesome. I've been diagnosed since September and the kind folks here really help me a lot.

I've been on Avonex for almost two months. There definitely is a lot to learn about MS and the treatments. Ask any questions here.

I'm on ultram for pain too. I have a chronic stabbing, burning hot-poker like feeling in my upper back. IV steroids made it go away for awhile, but it's back. I've been suffering from depression for almost a year now, and since it's also a side effect of Avonex (maybe all interferons, not sure) I think it's time I started an antidepressant. I've been on them before. Anyway, welcome!