Symptoms Becoming More Frequent/More Pronounced - Multiple Sclerosis Message Board

Blessed4Life · 01-08-2008, 05:39 PM

Hey Everybody,

I am counting down until my next neuro appt. I have been journaling my symptoms since about mid-december. I finally decided to do it and it isn't as tough as I thought. I use my Outlook calendar at work (I can access it from home on the weekends) to document what I am experiencing. I have noticed that since I started journaling, I have not had one day where I didn't experience something and I am also experiencing more aggressive symptoms. I have always had the muscle jerkings and finger twitches, but I have noticed that the muscles are now not only jerking but tightening like a charlie horse especially in the back of my legs (both). I have had them in the calf area, back of knees, and front/back of thighs. I am also have more and "sharper" electric shock pain in my fingers, joints, and even in my head, especially around my ear. I have also had my eyes twitching (top and bottom lids, tear duct area, and what feels like my eyeball is jerking). For the past three days my left eye lid has twitched (feeling like is going to curl up) for the past three days.

What is going on with me? I am praying that I can finally get another MRI and that I can get some answers. Do these symptoms sound familiar to anyone else? I forgot, I am also vibrating and have general leg weakness. For about four days last weak I was so fatigued I felt like I was dragging a dead man on my back. Oh yeah, I am still forgetting words and using the wrong words all together.

duttin · 01-08-2008, 06:00 PM

Blesssed,

Your Symptoms Sound All To Familiar,the Leg Tightness With Cramps Could Be Associated With Spacticity.

The Eyes , I'd Push For A Opthamologist Appointment As The Eyes Should Never Be Left Untreated,the Jerky Eye Movements Could Be A Form Of Nystagmus.

When Is Your Neuro Appointment?they Need To Do A Full Panel Of Mri's Brain C-spine And Thoracic.

Have They Done Any Evoked Potentials?

I'm Gonna Ask Ya A Stupid Question,what Does Your Hands Feel Like When Ya Put Them In Hot Water?

You Really Need Answers Soon

T

Blessed4Life · 01-11-2008, 03:21 PM

Duttin,

My neuro appt is on Monday. I am praying that something comes of it. My symptoms are actually scaring me (for the first time). I actually feel like my body is under attack. Aside from the brain MRI I had about two years ago (that the new neuro couldn't find results for and the old neuro never actually showed me -- just said it was "ok" but she never actually had them in front o of her). My plan is to insist on all of the tests you mentioned.

I am have what I can only describe as a relapse. My symptoms are jumping around my body from arms, legs, torso, buttocks, face, hands, and feet. I am having muscle spasms, spastisity, numbness, electrci shock pains, muscle pains, and joint pains. I don't know what I will do if the neuro appt doesn't go well.

I feel so alone. My husband doesn't understand. My sister has been counseling me about "claiming" a condition. I tried to explain to her that when your body is doing the things my body is doing, you can't just ignore it. I have faith in God and I trust Him with my life. If I do have MS or whatever is causing all of this, I wouldn't look at it as a curse. This is just something for me to be a witness about. I just hate being in the dark about what this is and suffering alone.

Michelle

cyprian1 · 01-11-2008, 06:06 PM

Quote:

Originally Posted by Blessed4Life

Duttin,

My neuro appt is on Monday. I am praying that something comes of it. My symptoms are actually scaring me (for the first time). I actually feel like my body is under attack. Aside from the brain MRI I had about two years ago (that the new neuro couldn't find results for and the old neuro never actually showed me -- just said it was "ok" but she never actually had them in front o of her). My plan is to insist on all of the tests you mentioned.

I am have what I can only describe as a relapse. My symptoms are jumping around my body from arms, legs, torso, buttocks, face, hands, and feet. I am having muscle spasms, spastisity, numbness, electrci shock pains, muscle pains, and joint pains. I don't know what I will do if the neuro appt doesn't go well.

I feel so alone. My husband doesn't understand. My sister has been counseling me about "claiming" a condition. I tried to explain to her that when your body is doing the things my body is doing, you can't just ignore it. I have faith in God and I trust Him with my life. If I do have MS or whatever is causing all of this, I wouldn't look at it as a curse. This is just something for me to be a witness about. I just hate being in the dark about what this is and suffering alone.

Michelle

i totally understand ,i had a husband that had little or no sympathy, and only my mom and baby bro knew what i meant by "i am tired", "i can't today" etc ... some folks actually were saying what your sister said , only i was called a phoney .. how can i still be walking,, they did not know i used a chair for a little over a month .. i couldn't recognize faces and definately couldn't remember and was in pain 24-7 and on drugs .. neither did i bother to explain it any further ..

some people who were friends , helped me out by making sure i had shade, water, seat, and or a ride if needed .. some have passed on and i will miss them dearly .. but my dearest people in my life so understand .. it is nice when i don't have to keep explaining myself , too ...

i am also feeling the residue of a relapse still, from july 05 .. quite a bit has stuck with me , my gait, the finger curl (continually now in right hand) , my hips , especially the right is like a burning sensation i have never experienced , so that is new and only within last few months .. so i too am bouncing around with symptoms and have to wait til i see the neuro ..

so blessed4life , i am with you , as a kindred spirit, so you are not suffering alone , trust me , i am with you .. adrian

Bearygood · 01-11-2008, 06:24 PM

Michelle, just wanted to wish you luck at your appointment! Please let us know what happens.