| Had My Neuro Appt Today, Didn't Give Up Without a Fight
Well, I saw my neuro today. The hour I waited in the waiting room, I was praying that my symptoms wouldn' suddenly stop making me feel and sound like a crazy women. Well, they showed up for the appointment...numbness, vibrating, muscle spasms and jerks. So anyway, I go back and we sit down. She goes over the bloodwork I had done at my last appt and found that it was normal. I then asked her again about the MRI I had a couple years ago but never got a definitive answer on the results. She still didn't have them, but had the report faxed over. It was done only without contrast and was "negative". Anyway, she accepted that as if there was nothing left to do in that regard and looked at my journal of symptoms. She looked lost. She kept say the journal was good but didn't give me any answers. She seemed lost and said so. She then went to talk to her attending. At this point she has not put one hand on me. She comes back to say the attending was gone for the day and she didn't know what do next.
That is when I had to let her have it! I told her that I was very offended that i have been coming to this office for two years now and I have not learned anything new. My MRI is from 2005 and she doesn't think it necessary to do another. Oh, yeah, prior to my blowup she indicated that the symptoms might be "benign" and nothing to worry about. I asked her how many 35 year olds have been suffering from progressively worse/new symptoms since 2003 should just accept it without question or need for aggressive action. She finally came clean and said she as clueless. I told her I think I have MS and she said doesn't think so, but would refer me to a neuromuscular specialist. I am being referred for the evoked potentials tests. She said that it should show there is nothing serious to worry about. I just wanted to scream! Once I can go a month without an abnormal activities in my body, then I'll know it not serious. She mentioned that it may be systemic. Since I also see a rheumotologist (I see him next week) who thinks it may be Lupus, I am going to share with him what she said.
No diagnosis, but more tests. Michellle
|