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Old 01-14-2008, 06:39 PM   #1
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Had My Neuro Appt Today, Didn't Give Up Without a Fight

Well, I saw my neuro today. The hour I waited in the waiting room, I was praying that my symptoms wouldn' suddenly stop making me feel and sound like a crazy women. Well, they showed up for the appointment...numbness, vibrating, muscle spasms and jerks. So anyway, I go back and we sit down. She goes over the bloodwork I had done at my last appt and found that it was normal. I then asked her again about the MRI I had a couple years ago but never got a definitive answer on the results. She still didn't have them, but had the report faxed over. It was done only without contrast and was "negative". Anyway, she accepted that as if there was nothing left to do in that regard and looked at my journal of symptoms. She looked lost. She kept say the journal was good but didn't give me any answers. She seemed lost and said so. She then went to talk to her attending. At this point she has not put one hand on me. She comes back to say the attending was gone for the day and she didn't know what do next.

That is when I had to let her have it! I told her that I was very offended that i have been coming to this office for two years now and I have not learned anything new. My MRI is from 2005 and she doesn't think it necessary to do another. Oh, yeah, prior to my blowup she indicated that the symptoms might be "benign" and nothing to worry about. I asked her how many 35 year olds have been suffering from progressively worse/new symptoms since 2003 should just accept it without question or need for aggressive action. She finally came clean and said she as clueless. I told her I think I have MS and she said doesn't think so, but would refer me to a neuromuscular specialist. I am being referred for the evoked potentials tests. She said that it should show there is nothing serious to worry about. I just wanted to scream! Once I can go a month without an abnormal activities in my body, then I'll know it not serious. She mentioned that it may be systemic. Since I also see a rheumotologist (I see him next week) who thinks it may be Lupus, I am going to share with him what she said.

No diagnosis, but more tests. Michellle

 
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Old 01-14-2008, 07:13 PM   #2
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Re: Had My Neuro Appt Today, Didn't Give Up Without a Fight

OH Michelle...how sorry I am for your frustration. You sound so upset, Im upset for you..
Have you considered seeing another Neuro or even an MS SPecialist? Is it possible, in your situation to change doctors? I mean seriously, your symtoms are screaming "something is wrong" and yet this person who calls herself a doctor, isnt doing much at all...
On the other hand, evoked potentials MIGHT show something. Others on this board have been dx with just those results...and seeing another doctor is definately in your favor...but in the meantime, can you find someone else to see? Evoked Potentials are an interesting test..they can say absolutely NOTHING or something....
Another thought, have you seen a good opthamologist lately? Only ask because Optical Neuritis is another way of looking for MS...it might do you good just to have a good eye exam and see what another type of doctor says...are you having any eye issues at all?

Im really sorry for your news....it had to be depressing to hear that...but if nothing else, I think you can seriously write this doc off as one of the bad ones and start looking elsewhere...there HAS to be answers.

Hugs to you...and your in my prayers.
Nikki
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Old 01-14-2008, 07:25 PM   #3
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Re: Had My Neuro Appt Today, Didn't Give Up Without a Fight

Hi Michelle~

I definately know how your feeling because I'm right there along with you. Searching and not finding. And I feal your frustration. As the appointments get close, theres a sense that "maybe" this will be the time I'll get somewhere. When you walk out, knowing nothing more than when you went in, just feeling more frustrated, It is very discouraging.

Nikki is right, maybe you need to head in a different direction, a different dr. Sometimes, a new dr might just hit on it!!

Keep searching Michelle!! Good luck and I'm rooting for you!!

Cindy

 
Old 01-15-2008, 04:49 AM   #4
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Re: Had My Neuro Appt Today, Didn't Give Up Without a Fight

Michelle
You poor thing.. How upsetting for you not to have some answers.
Glad you let her have it. Sometimes to have to show your teeth to get noticed.
Good to hear your seeing someone else. Hopefully you'll get the care you need to find those answers. Something is defintly going on with you.

Good luck, Hope it goes well. Take care

 
Old 01-15-2008, 11:26 AM   #5
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Re: Had My Neuro Appt Today, Didn't Give Up Without a Fight

How horrible to be in limbo like this Michelle.

I was dx with evoked potentials, physical exam and detailed history, told them what they could do with the lumbar puncture!

I had stuff going on for years but every time I decided to see the doctor the symptoms went away, or changed. I was finally diagnosed 10 years ago and the doctors think I may have had ms since my teens - 30 years!

Keep pushing, you need to know, good luck.

 
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