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Old 02-28-2008, 01:23 PM   #1
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MSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB UserMSNik HB User
Score another one for Rebif?!

You'll notice both a question mark and an exclamation point at the end of my thread title..
Is it the Rebif which is working or the disease which ISNT progressing? OR is it the same thing??
however, I did have an MRI last week and saw both my Neurologist and MS Specialist in the last 24 hours. I didnt want to post until I heard from both of them and found out if they both saw the same thing. My guys DONT read the reports...they read my films To date, they have always been on the same page as far as what they have seen-
No new lesions, after almost 18 months on Rebif...
the new symtoms which I had mentioned starting, the migranes as well as the foot numbness- they both write off as simply symptoms, but not relapses. My eyes checked out fine, for once..my balance and coordination were better than 6 months ago when I was last evaluated.
I was given a nasal spray to try for the migranes- it kind of scares me- but I took the sample...
And, i was told that they are having alot of success with Cymbalta for pain and numbness. I was given a script, but Im going to ask you guys- who has used it and what side effects have you had??

Overall, thrilled to death that my MS is what they consider stable. I have to tell you, Im a fan of Rebif. I really am...whether or not my disease would be this low activity without it, isnt something I am ready to explore at this time, but overall, even with the headaches, the numbness and tingling- I know Im doing great- and that, is worth the tiny inconvience of a needle 3 times a week.
But, wasnt looking to just update, as much as ask about cymbalta and opinions...and throw the Rebif thing out there...just for an FYI.


hugs
Nikki
__________________
RRMS- dx 05
Rebif 2005-2011
LDN Sept. 2011
"Every New Beginning Comes From Some Other Beginning's End"

Last edited by MSNik; 02-28-2008 at 01:23 PM.

 
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Old 02-28-2008, 02:21 PM   #2
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tuckersmom HB User
Re: Score another one for Rebif?!

You said it...it doesn't matter if it's the Rebif or the disease is not progressing...it is fantastic news and you needed it .....BIG TIME!!!!!!!!!

I was so happy to read that today. I am also curious about the Cymbalta. I have read lots of good things about it so will be interested to read what anyone says.

So, so happy for you dear friend

big hugs!
Lisa

 
Old 02-28-2008, 02:51 PM   #3
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ShelleyTab HB User
Re: Score another one for Rebif?!

MSNik - I just wanted to offer a congradulations! It's great to hear your doing well on the rebif and I hope it continues to work out for you!

Shell

 
Old 02-28-2008, 06:16 PM   #4
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Re: Score another one for Rebif?!

Thanks you guys...wanna hear something amazing? ONE of the major warnings on Cymbalta is NOT TO USE IT IF YOU ARE TAKING MIGRANE MEDICINE! My Neuro gave me a spray for migranes, and my MS SPecialist was told that today, yet he still gave me a script for Cymbalta, for the nerve pain. Now Im all sorts of confused!
But, having read the Cymbalta information, I already know Ill never take this drug. Im pretty much anti-anything which has this many side effects. Besides, Ive lived with the pain almost 2 years now- its the migranes I can do without!
interesting...I had a strange feeling about this when he told me to try it..now, having read all about it, I can honeslty say Ill never filll the script.
Thanks though, appreciate your being happy for me about the MRI and lack of progression!
Hugs,
Nikki
__________________
RRMS- dx 05
Rebif 2005-2011
LDN Sept. 2011
"Every New Beginning Comes From Some Other Beginning's End"

 
Old 02-28-2008, 07:51 PM   #5
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tuckersmom HB User
Re: Score another one for Rebif?!

Nikki, I just got on line to tell you I looked farther into my medical sites about the Cymbalta and was going to warn you about all of the side effects and the migraine meds issue and all of the other stuff you can't use but you beat me to it.!!!! You're right..bad communication between the two doctors. I'm with you, wouldn't take either. I had a bad night last night with pain but everytime I look up one of the meds you can use .. there are just too many side effects, then you have to take stuff to help with the side effects.. It's never ending so I just don't get started.

Take care.

Lisa

Last edited by tuckersmom; 02-28-2008 at 07:54 PM.

 
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